September 2018 Facebook Blog

The following is a summary of relevant article/research links provided in September by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Fibromyalgia: ‘Like red hot lava radiating through my body’  A Crucial Role of Insulin Has Just Been Discovered in The Body’s Immune System   Israeli Scientists May Have Found A Cure for MS, Alzheimer’s, Crohn’s And Colitis in One Single Drug  Ministers hail ‘historic moment’ as Scottish welfare agency makes first payments  You could be eligible to receive up to £140 off your electricity bill this winter  The Largest Ever Clinical Study on Vitamin

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August 2018 Facebook Blog

The following is a summary of relevant article/research links provided in August by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs New Insights into Exercise Intolerance and Medication  The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia  Long-Term Heat Therapy Increases Mitochondrial Function in Muscles Having ME Is Like Being Permanently Encased In A Suit Of Armour  NHS to update classification system to reflect that M.E. is neurological disease | 06 August 2018  CFS/ME  – Guidelines for the Disability Analysis   Millions suffer from an invisible disease: My ME/CFS story Management of

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July 2018 Facebook Blog

The following is a summary of relevant article/research links provided in July by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Major Research Group Highlights Inflammation Energy Production Connection In ME/CFS NIH grant  Advancements in ME/CFS research Insights from metabolites get us closer to a test for chronic fatigue syndrome CBT & GET – Parliamentary Question The “X” factors of ME Major Research Group Highlights Inflammation Energy Production Connection in ME/CFS Trial By Error: The Contentless “Editor’s Note” About the Lightning Process Trial The microbiome hypothesis: Lipkin’s collaborative, part 1 The Cortene Chronic Fatigue Syndrome

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June 2018 Facebook Blog

The following is a summary of relevant article/research links provided in June by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Brain differences shown in chronic fatigue syndrome (Fukuda) study Norwegian researched ask ‘What exactly is M.E.?’  The German CFS treatment Carol Monaghan and other MPs secure Westminster Hall debate on M.E. | 07 June 2018 Trial By Error: A Curriculum for Treating CFS with CBT Large NK Cell Study Points to Autoimmunity and Inflammation in Chronic Fatigue Syndrome (ME/CFS) Fibromyalgia Researcher & Doctor Asks “Chronic Pain: Is It All in Your Head” (Hint: It’s

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May 2018 Facebook Blog

The following is a summary of relevant article/research links provided in May by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome ME Awareness Week: BBC Newsbeat Documentary Missing the fizz: my long battle to understand the mysteries of ME This is why exercise can’t cure illness ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP ‘Urgent change’ needed to improve lives of ME sufferers On Saturday ‘millions’ of ‘missing’ people will reappear for the day ME

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@Unrestfilm

Today’s Unrest in Dumfries and Galloway event.  We’d invited the NHS, MSPs and other third sector organisations to a showing of an excerpt from Unrest to be followed by discussions. Thank you so much to Paul, Nancy, Lesley, Sarah and Connor who were thrown in at the deep end when Jen Brea wasn’t well enough to Skype with us.  They talked about their illness and how it affects them, which was much better for the understanding of those in the auditorium.  They were moved. You spoke powerfully and you spoke well. The discussion then moved on to our current situation in D&G – mainly in the NHS.  Some good suggestions were made

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April 2018 Facebook Blog

The following is a summary of relevant article/research links provided in April by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Hope for an ME/CFS Autoimmune Subset: A German Researcher Steps Forward ‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’. Daughter died aged 21 after illness some experts don’t believe is real left her bed-bound and wasting away Music 4 M.E Possible causes of medically unexplained symptoms Trinity College: New research network will bolster our understanding of Chronic Fatigue Syndrome | 31 March 2018 Progress in

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March 2018 Facebook Blog

The following is a summary of relevant article/research links provided in March by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs BBC ‘Why do we know so little about ME?’. The Scottish Government is developing an Action Plan for Neurological Conditions.  The Alliance Neurological Programme and Neurological Alliance of Scotland created a survey to obtain patient and carers experiences. The survey closed on 29th March. ME / CFS patient Post exertional malaise avoidance toolkit. Read about Lizzie Mooney who is 12 years old who has been sick for the past three years with ME. Trial

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February 2018 Facebook Blog

The following is a summary of relevant article/research links provided in February by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Personal Independence payments: All 1.6 million claims to be reviewed. Oscar-nominated film director in ME plea to MSPs. BBC Radio Scotland: ME – The Invisible Disease. Brainwaves on ME. A story of confusion, misunderstanding, misdirection, misdiagnosis and misery. Lady Gaga halts tour for a second time due to ‘severe pain’. Medically Unexplained Symptoms – A Practical Guide. Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts. Rethinking the treatment

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