September 2017 Facebook Blog

The 5th October meeting will start with our Annual General Meeting (AGM).  We need a minimum of 10 members to attend for this please. Articles / Blogs Metabolic switch may bring on chronic fatigue syndrome, article .  ‘The team is now conducting a large trial in Norway of the cancer drug rituximab, which destroys the cells that make antibodies, in people with CFS.  Results are expected next year.’ Lady Gaga was taken to hospital in ‘severe pain’ cancelling her Rock In Rio appearance. Shortly afterwards she confirmed she has Fibromyalgia, forcing her to reschedule her European leg of her tour, BBC article.  For those of you with Netflix, her documentary, Gaga:

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August 2017 Facebook Blog

As we enter September there is a definite nip in the air.  If like me you find your body thermostat is wonky, the start of the cold weather will hit you hard, so try and remember to layer up. Thank you to all the members who completed our survey which will help us focus our own depleted energies on the things that you have shared matter to you.  We really do appreciate the time you put in completing this survey as we understand how difficult completing the simplest of tasks can be. The 7th September meeting has the theme of Medications and Supplements.  Come along and share what works for

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July 2017 Facebook Blog

Welcome to August and for registered members, the receipt of our feedback questionnaire which we would be very grateful for members to complete.  Although this has been provided in paper format, completing this online would really help us out as your record would immediately be saved and stored in a secure location. There were lots of interactions this month with members sharing advice, offering suggestions or empathising where Facebook members were struggling. Articles / Blogs The article ‘Even “Minor” Infections Can Cause Chronic Fatigue Syndrome (ME/CFS)’ was shared. The article ‘Biological underpinnings of chronic fatigue syndrome begin to emerge’ was shared. The ME Association article ‘CDC removes CBT and GET

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June 2017 Facebook Blog

Welcome to July and the start of School holidays. If you are interested in helping with the creation of the monthly Facebook blog, please email Kim (Secretary) at: kim@dgmefm.org.uk. 😊 Articles / Blogs One of the biggest myths about chronic fatigue syndrome just got destroyed in this article which suggests a faulty cell receptor. Could there be a biomarker for ME/CFS?, check out this article. The article ‘Brit scientist could be about to CURE multiple sclerosis and provide hope for millions’ was shared as potentially could, in time, cure other conditions.  The article explains how they are not using any drugs but instead simply switching on the body’s own systems of

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May 2017 Facebook Blog

A big thank you to the Network members who brought awareness to shoppers visiting Tesco Extra, Cuckoo Bridge, Dumfries on Awareness Day, 12th May 2017.  Check out one of the pictures on our blog. If you are interested in helping with the creation of the monthly Facebook blog, please email Kim (Secretary) at: kim@dgmefm.org.uk Articles / Blogs How to tell if it’s Fibromyalgia or Multiple Sclerosis is available at link. Stereotyping still prevents ME from being taken seriously is available at link. Kay Adams revisited ME on her show on Awareness day, see link. Reduced cardiac volumes in chronic fatigue syndrome associate with plasma volume but not length of disease: a cohort

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12th May 2017 International Awareness Day

Please come along and support us at the big Tesco Extra, Cuckoo Bridge in Dumfries on 12th May, Awareness Day, as we let people know about ME and Fibromyalgia.  We’ll have a desk near the entrance to answer any questions people ask, and hand out contact cards for the group.  We also have purple (for Fibromyalgia) and blue (for ME/CFS) Awareness ribbons to give out in exchange for a donation.

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April 2017 Facebook Blog

Members of the Network will have a stand in the foyer at Tesco Extra, Cuckoo Bridge, Dumfries on Awareness Day, 12th May 2017 to share information about these illnesses and the Network.  Both blue and purple ribbon pins will be available. Articles / Blogs A Scottish student will walk the red carpet at this year’s Cannes film festival after his short graduation film was chosen from thousands of entries to compete for a prize.  Wild Horses, which he wrote and directed, is about a teenage girl who has myalgic encephalopathy (ME), or chronic fatigue syndrome.  Check out the article. On 21/4/17, the ME Association posted about an ongoing storyline about

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March 2017 Facebook Blog

Well spring has finally sprung when the clocks went forward on the 25th of March.  Hopefully the weather will get better and we will all feel a little better.  I myself am feeling a little better so I hope everyone will to.  We have had some new members to the Facebook page and I would like the opportunity to welcome you to the group.  As usual we have had a few articles and websites added by the group to keep us informed of what is happening else where in the world.  I’m going to list these and I hope you will find them as useful as I have. Useful Websites and

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February 2017 Facebook Blog

I am sure you are all pleased to see our March Newsletter, available at; March 2017 Newsletter.  Thank you everyone who contributed to this edition.  If you have a story about your illness that you feel happy to share, please get in touch by emailing us at; admin@dgmefm.org.uk. 2nd March 2017 Midsteeple Meeting: This meeting will be a chaired discussion themed on ‘what has helped me’.  Please come along prepared to talk about at least one thing which has helped you cope with your symptoms.  It could be useful to bring a pen and pad to note down anything which may have helped others which you hadn’t thought of yourself. February

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