November 2016 Facebook Blog

A message from the Network secretary: I am sure you are all pleased to see our December Newsletter, available at; December 2016 Newsletter.  Thank you everyone who contributed to this edition.  If you have a story about your illness that you feel happy to share, please get in touch by emailing us at; admin@dgmefm.org.uk.  Members have all been provided with a small supply of leaflets with this Newsletter in an attempt to spread the word of our existence and to point those newly diagnosed towards the help and support which is available. November 2016 Facebook Blog from Network Member Michelle: The winter is certainly with us and we are all dealing with

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1st December 2016 monthly meeting with FMA UK (Fibromyalgia Action UK)

Hazel Borland from FMA UK (Fibromyalgia Action UK) will be at the meeting to talk to us about the work they do. There will be plenty of time for the usual catch ups and coffee and tea will be available. The meeting will be held in the Midsteeple in the centre of Dumfries High Street.  Entry is through the blue Box Office door.  We use the first floor meeting room and there’s full disabled access using the lift (press and hold the button).

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October 2016 Facebook Blog

October’s Facebook update blog comes from your network secretary, Kim. ¬†Hopefully Michelle will be available to pick this back up next month. Articles / Blogs ‘A race to produce the first drug for chronic fatigue syndrome’ is available at: http://www.healthrising.org/blog/2016/10/05/race-produce-drug-chronic-fatigue-syndrome-younger/ ‘Matter over mind: The strange case of the ME study’ is available at: http://www.meassociation.org.uk/2016/10/matter-over-mind-the-strange-case-of-the-me-study-wddty-magazine-october-2016/ Dumfries & Galloway Council can provide you with a personalised support plan and individual budget which allows you flexibility and control, read more at: http://www.dumgal.gov.uk/article/15772/Personalisation-and-self-directed-support A blog on Flu and vaccinations is available at: https://aprescriptionforme.wordpress.com/2016/09/23/flu-and-the-flu-vaccination/ ‘Researchers discover brain signature that may help identify fibromyalgia patients’ is available at: http://www.news-medical.net/news/20161017/Researchers-discover-brain-signature-that-may-help-identify-fibromyalgia-patients.aspx ‘Mella Finds Hypometabolic State in Chronic Fatigue

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3rd November 2016 monthly meeting with Community Champion from Tesco

Come along to our next monthly meeting on 3rd November, 1pm to 3pm to meet Anne, a Community Champion with Tesco.  Anne has kindly offered to meet us to see what she can do to raise awareness and possibly funds. There will be plenty of time for the usual catch ups and coffee and tea will be available. The meeting will be held in the Midsteeple in the centre of Dumfries High Street.  Entry is through the blue Box Office door.  We use the first floor meeting room and there’s full disabled access using the lift (press and hold the button).

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September 2016 Facebook Blog

So Michelle has been on her holidays which means this months (September 2016) Facebook update blog is from your network secretary, Kim. I am sure you are all pleased to see our September Newsletter, available at; http://dgmefm.org.uk/wp-content/uploads/2016/09/Newsletter-2016-September.pdf.  Thank you everyone who contributed to this edition.  If you have a story about your illness that you feel happy to share, please get in touch by emailing us at; admin@dgmefm.org.uk. Membership to the charity is free but we have overheads to cover like the cost of producing the newsletter, if you wish to make a donation you can do so by visiting our donations page; http://dgmefm.org.uk/donations/.  Another way to help raise funds

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August 2016 Facebook Blog

Hopefully everyone is enjoying the weather we have been having, even the few bad days we have had. ¬†Summer is quickly passing by and the nights are slowly drawing darker. ¬†I myself am getting ready to head to the sun for 2 weeks so someone else will write September’s blog. The group on Facebook has had a very active month, with highs, lows and laughter. ¬†Even though we have our problems we all like to have a giggle. ¬†To be honest, laughter and some humour is good for the soul. Articles / Blogs As normal there has been links submitted about different information that we may find helpful to read

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July 2016 Facebook Blog

Well July 2016 has been a busy month for the members of the group. ¬†There has been a wide range of topics and comments to ask for help or to give advice to one another. ¬†Even pictures to have a giggle. Articles / Blogs ‘The Exercise Intolerance in POTS, ME/CFS and Fibromyalgia Explained’ paper was posted, it is a lengthly paper but worth the read; the paper can be found at http://www.healthrising.org/blog/2016/07/04/exercise-intolerance-fibromyalgia-chronic-fatigue-pots-explained/ There was an article posted on how over $1 million has been spent fighting PACE trial data release. ¬†The article is about how no one will get to see raw detail of the PACE trial; visit http://www.healthrising.org/forums/threads/over-1-million-spent-fighting-pace-trial-data-release.4622/to access

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Listening Books

Free memberships available for audiobook library service Listening Books is a national charity that provides a postal and online audiobook library service to children and adults who struggle to read or hold a book due to an illness, disability, mental health issue or learning difficulty, and they have recently received funding to offer a number of FREE memberships to people living in Scotland who would find the usual membership fees (£20 Р£45 per year) a barrier to joining the service. The library has a huge range of brilliant fiction, non-fiction and educational audiobooks from bestselling authors such as Philippa Gregory, James Patterson, Agatha Christie, JK Rowling, David Walliams, Jacqueline

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