Today’s Unrest in Dumfries and Galloway event. We’d invited the NHS, MSPs and other third sector organisations to a showing of an excerpt from Unrest to be followed by discussions. Thank you so much to Paul, Nancy, Lesley, Sarah and Connor who were thrown in at the deep end when Jen Brea wasn’t well enough to Skype with us. They talked about their illness and how it affects them, which was much better for the understanding of those in the auditorium. They were moved. You spoke powerfully and you spoke well. The discussion then moved on to our current situation in D&G – mainly in the NHS. Some good suggestions were made
Please join us for a showing of @unrestfilm in Dumfries on Tuesday 15th May at 7pm at the Robert Burns Centre Film Theatre, followed by a discussion with Dr Charles Shepherd, Medical Director of @MEAssociation. #mecfs #pwme #timeforunrest @jenbrea
For the July meeting, Theresa and April from Action For ME will be in attendance. As well as explaining what they do, they are keen to listen about health care experiences (NHS or private) and improvement suggestions from members. We hope this could be the start of a fuller consultation, with ideas to be further developed in future sessions. Although it is ME/CFS focussed, it will be applicable to fibromyalgia and other fatiguing and difficult to diagnose conditions too. Please come along to meet Theresa and April and share what has worked and any ideas you may have to make things better for your own care and that of others.
Please come along and support us at the big Tesco Extra, Cuckoo Bridge in Dumfries on 12th May, Awareness Day, as we let people know about ME and Fibromyalgia. We’ll have a desk near the entrance to answer any questions people ask, and hand out contact cards for the group. We also have purple (for Fibromyalgia) and blue (for ME/CFS) Awareness ribbons to give out in exchange for a donation.