28th October 2021 @ 1:30 pm – 3:00 pm

Following the results of a survey we carried out in the summer, we’re now digging deeper into some of the ideas that were put forward. As a member-led organisation, we’re keen to know what you think.


We are busy developing some of these ideas into new projects that we think will help all our members and the Network as a whole, both now and in the longer term. These include:


  • a befriending service, which would match volunteers with sufferers who are most isolated, providing vital additional peer support.
  • an ‘expert patient mentor’ scheme, which would involve volunteers who themselves suffer from ME, CFS and Fibromyalgia supporting others who have just been diagnosed).

This focus group is a chance to tell us what you think about these new projects and support of people with ME, CFS, Fibromyalgia and Long Covid.