Trustees’ Annual Report for the period:
01/08/2017 to 31/07/2018

Office of the Scottish Charity Regulator (OSCR)

Reference and Administration Details

Charity name

Dumfries & Galloway ME and Fibromyalgia Network
Other names charity is known by DGMEFM Network
Registered charity number SC030641
Charity’s principal address Thistledew
Albert Street
Dalbeattie
DG5 4JP

Names of the charity trustees on date of approval of Trustees’ Annual Report

Trustee name Office (if any) Dates acted if not for whole year Name of person (or body) entitled to appoint trustee (if any)
1 Craig Woods Chairman
2 Paul Thompson Treasurer
3 Kim Jakobsen Stood down as secretary from 5/10/17
4 Nancy Wilson
5 Lesley Grieve   From 12/4/18

Names of all other charity trustees during the period, if any, (for example, those who resigned part way through the financial period)

Name Dates acted if not for whole year
Louise Adair Until 5/10/17
Alex Thelwell 5/10/17 until 12/4/18
Kim Dams Existing trustee took on role of Secretary from 5/10/17 until resignation 12/4/18

Structure, Governance and Management

Type of governing document

The Network is a charitable unincorporated association and the purpose and administration arrangements are set out in our constitution.

Trustee recruitment and appointment

The Network trustees are appointed by the members at our Annual General Meeting.

Objectives and Activities

Charitable purposes

To support the needs of people in Dumfries & Galloway who suffer with Myalgic Encephalomyelitis (ME), Fibromyalgia (FM) & Chronic Fatigue Syndrome (CFS).

Summary of the main activities in relation to these objects

  • Raise awareness of the issues surrounding these illnesses.
  • Offer support to any person suffering with any of these illnesses or any matter concerning them.
  • Facilitate a mutual support network.
  • Enable access to transport, shops, public buildings, education and any other public facility for any person suffering with any of these illnesses.
  • Act as a central point for representative consultation between people with these illnesses and other agencies, including Dumfries & Galloway Council and NHS Dumfries & Galloway.
  • Gather and provide information about all aspects of these illnesses.

Achievements and Performance

Summary of the main achievements of the charity during the financial period:

Membership:

  • 42 (nett) new members of Facebook page.  Total 223 at 31st July – increase of 22% since 1st Aug ’17.
  • Total 358 full members at 31st July (excluding Facebook only) – nett increase of 37 or 11.5%.
  • Privacy policy issued to all members in compliance with GDPR.

Support to members:

  • Facebook.
  • Website info plus monthly blog and meetings calendar.
  • Newsletter x 4.
  • Monthly meetings with themed discussions, some including speakers: a nutritionist, AfME consultation, and a psychologist; plus 7 pop-up social meetings – Castle Douglas (3), Stranraer (3), and Dumfries (1).
  • Support to individuals in phone calls and messages.
  • Follow up of members’ needs questionnaire to better tailor our support and Network priorities.
  • Arrange public showing of Unrest in Dumfries Burns’ Cinema followed by discussion.

NHS liaison:

  • AfME hosted round table discussion at one of our monthly meetings with invited professionals from health and social care.

Promoting the Network more widely in the region: 

  • Organised event and publicity around Awareness Day with NHS, Third Sector agencies, local politicians and more invited.
  • Several trips to the Scottish Parliament to lobby on behalf of the Network and members.
  • Lobbied local politicians by email.

Financial Review

Brief statement of the charity’s policy on reserves The Network had unrestricted reserves of £3,229 as at 31st July 2018.

This level of reserves should allow the Network to continue its charitable activities for a further 12 months and allow for any fall in income.

Details of any deficit

 N/A
Donated facilities and services (if any) N/A

Other Information

 None

Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s)
Full name(s) Craig Alun Woods
Position (e.g. Chair) Chairman
Date 15th August 2018

Dumfries & Galloway ME and Fibromyalgia Network
Scottish Charity Number SC030641

Receipts and Payments Account for the year ended 31st July 2018

Unrestricted Funds
(£)
Restricted Funds
(£)
Total 2018
(£)
Total
2017
(£)
Receipts
Donations
Fundraising
Grants
Gift Aid
Bank Interest
Other
1,103
135
0
229
0
0
0
0
0
0
0
0
1,103
135
0
229
0
0
1,006
298
0
176
0
0
Total Receipts 1,467 0 1,467 1,480

Payments
Cost of fundraising: 2 0 2 12
Total Cost of fundraising 2 0 2 12
Payment for charitable activities:
Postage
Stationary and printing (newsletter etc)
Travel Expenses
Room hire
IT
Publicity
Sundry (leaflets, cards etc)
601
209
86
0
35
173
90
0
0
0
0
0
0
0
601
209
86
0
35
173
90
641
195
94
0
60
766
0
Total Payments for charitable activities 1,194 0 1,194 1,756
Governance costs:
Preparation of annual accounts and IE
Advertising of AGM
40
0
0
0
40
0
40
0
Total Governance costs 40 0 40 40
Total Payments 1,236 0 1,236 1,808
Surplus / (deficit) for year before transfers
Transfers between funds
231
0
0
0
231
0
(328)
0
Surplus / (deficit) for year 231 0 231 (328)

Dumfries and Galloway ME Network
Scottish Charity Number SC030641

Statement of Balances as at 31st July 2018

2018 (£) 2017 (£)
Bank and cash in hand
Opening balance
Surplus / (deficit) for year
2,998
231
3,326
(328)
Closing balance 3,229 2,998
Reserves
Unrestricted funds
Restricted funds
3,229
0
2,998
0
Closing balances 3,229 2,998
Other Assets (Unrestricted Fund)
Computer equipment 64 64

All funds are unrestricted
Approved by the Trustees and signed on their behalf

Paul Thompson (Treasurer)
Date: 15th August 2018