For many people living with ME/CFS, the illness has developed following a viral infection. The ME/CFS community has been concerned that the Covid epidemic will result in more people developing ME/CFS as a consequence of catching Covid-19. It has now become evident that a significant cohort of those with Long Covid are experiencing symptoms similar to ME/CFS. While there are other serious conditions associated with Long Covid, our support is available for those whose main symptoms are like ME/CFS, and in particular where post-exertional malaise (PEM) is evident.  Whether or not you have been diagnosed with Post-viral Fatigue Syndrome or ME/CFS, if you are experiencing these symptoms you are welcome to join our community for peer support. 

In collaboration with the ME Association, and supported by grants from Foundation Scotland and The Robertson Trust, DGMEFM Network published this information leaflet (click on the link) for distribution across our Region. It contains advice produced by the ME Association for people with Long-Covid who have symptoms similar to ME/CFS. The rear cover gives information about DGMEFM Network and how to contact us.

 

More comprehensive updated guidance from the ME Association is available here.

What is Post Exertional Malaise?

Post-exertional malaise (PEM), also referred to as post exertional symptom exacerbation,  is the worsening of symptoms following even minor physical or mental exertion, with symptoms typically worsening 12 to 48 hours after activity and lasting for days or even weeks. It is a cardinal symptom of ME/CFS.