For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during September:

 

Research Opportunity

https://exe.qualtrics.com/jfe/form/SV_bjyGOweSJVw7vx4?fbclid=IwY2xjawFwpt5leHRuA2FlbQIxMQABHVM6_YkQ7DQryFGV7KFD9Q0t9d5mIiD9-Zfdrd2PbmjoCExyVTici_UoIQ_aem_ywd-Zk3GGabwTjs0-kiwIg

 

Help the British Psychological Society develop good practice guidelines for ME/CFS

https://meassociation.org.uk/2024/08/british-psychological-society-good-practice-guidelines/?fbclid=IwY2xjawFwp4BleHRuA2FlbQIxMQABHfs76eEEt4X5gqWfHE-0joQPuBpPi6GKlqA-qGVDfJNDZwaEqmxVQrPJ1g_aem_gAvq7X2knHagVF-GxZslGA

 

ALLIANCE responds to Adult Disability Payment Review consultation

https://www.alliance-scotland.org.uk/blog/news/alliance-responds-to-adp-review-consultation/?fbclid=IwY2xjawFwp_RleHRuA2FlbQIxMQABHQz6YUqUTqC4di8YxaMPWromBNg7-g_v7YI3M9HAX1TvFsNEhGC4_i_Cbg_aem_lDLhbKjO7RAkWFryL9xRCQ

 

New tool detects …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during August:

 

Why We Sleep (and What Happens When We Don’t)

https://www.healthrising.org/blog/2020/03/23/why-we-sleep-fibromyalgia-chronic-fatigue-walker/?fbclid=IwY2xjawFCe4hleHRuA2FlbQIxMQABHZIvDvR-qjyofkfI8Lt0zvCeoifO8aSvgzM_XTFDliVW5y_Sqfb1ztbC7g_aem_0b4FTrWpKALaraClzgEqVw

 

No one can do it alone: living with an invisible, misunderstood condition

https://www.alliance-scotland.org.uk/blog/opinion/no-one-can-do-it-alone-living-with-an-invisible-misunderstood-condition/?fbclid=IwY2xjawFCe8NleHRuA2FlbQIxMQABHa-e3_Wiij1RseE6hLCwb2hkhDvxtvgl-_PKVnuBW4lQNKMr0lqQUhrw0A_aem_miXFEGpWP_WaRg73brWd_w

 

**TW: Upsetting Content** Good …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during July:

FMA UK Newsletter

https://preview.mailerlite.com/d7z7u9o4p5/2513265503829498584/a4k5/?fbclid=IwY2xjawEdkR1leHRuA2FlbQIxMQABHTVbM3m6QKVHF_dnIe8xNWQOiG36zFr8yIpWfc1I7MGsDEZw4AUogjGkSQ_aem_Rg142JqTDmQZUT0gppTfDQ

 

‘Revolutionary’ device to tackle acid reflux given to first UK patients

https://www.itv.com/news/2024-06-17/revolutionary-device-to-tackle-acid-reflux-given-to-first-uk-patients?fbclid=IwY2xjawEdkWNleHRuA2FlbQIxMQABHWPYIOqqTMBtrx4OtMF7i8KXfIP-F4rxCnxvyGl-Azp–BAjkdlTh8uRyg_aem_mekJ7anYYkMXfTPgVur_Xw

 

Chronic virus found in Long Covid gut up to 2 years …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during June:

 

Carers UK is organising this open letter on behalf of unpaid carers across the UK. 

https://www.carersuk.org/news-and-campaigns/general-election-2024/open-letter-to-the-future-prime-minister?fbclid=IwZXh0bgNhZW0CMTEAAR0r1KDq6tPjmviD57X3Yka1jXHPKHrZIyoZcsoKHfe2SNpnyPyyyrkCaFI_aem_F3R6UJW6sn1jubHXN2Mlog

 

The ME association have created a new support pack for anyone …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during December and January:

 

Emma NextGen Premium Mattress

https://www.emma-sleep.co.uk/emma-nextgen-premium-mattress/?fbclid=IwAR0oCfVninz8z1iJfiqznN4xfDwwgUY9OWeWQ3IAgGwlXt3u4WAZEL_Z_aM

 

What to do if you think you need help with energy bills

https://www.smartenergygb.org/about-smart-meters/advice-for-those-worried-about-energy-bills?gad_source=1&gclid=CjwKCAiA1MCrBhAoEiwAC2d64SFLozBRqceDbCpARv6SUGK7_XbgS-iTTVvDErLTFnDKunxsnCDV2hoCmuIQAvD_BwE&gclsrc=aw.ds&fbclid=IwAR3C4lWFRi9N2lA0Dx4TC3SECKvwsQg1k9TqQa-E8Y-9qwsVFRSSlyeGYJw

 

Medical Matters

https://meassociation.org.uk/medical-matters/

 

Support to access benefits …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during May:

 

1 hour Westminster Hall Debate on ME is available to watch on parliamentlive.tv

 (https://tinyurl.com/5xkd68fk). Alternatively, ME Research UK has summarised the points raised for ease.  …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during April:

Taking Art Home Creative sessions

https://www.artinhealthcare.org.uk/art-workshops/taking-art-home/?fbclid=IwZXh0bgNhZW0CMTEAAR0RLZFvn5-LD1ENn7X17wyovjwhjHbJvG5WTxFhgNXSBezq8alIuCWGwj4_aem_Af4tm508dyh6bXDM9cBkz7dD5KyFD6me9QTmDCxKJAgsdFLxqolP-lWWgmYWEdO2338nRei3udi_zzZEM1dvucf_

 

Why fractalkine is important in chronic pain and fatigue

https://www.youtube.com/watch?v=OlpFPCwAyOc

 

M&S invests £1m in tackling methane from burping and farting cows …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during March:

The ME Association newsletter

https://app.getresponse.com/view.html?x=a62b&m=B0lTMX&mc=IC&s=BSbpTBz&u=ysztU&z=E9qqJMd&&fbclid=IwAR2Mboavxjnr96Di1EH2_qPV_-nqV4oUUmebSqu-YR1xVuEcOcUzrBWT9A8_aem_ASIvYCAQj_sXRVuBpo4ugViOB7oMQlQfqGu-y4l6g3G5eIVJn55TWkMT3RWHCLkm9j9FjIcG6FtatYBL2r64LKGY

 

Progress of Decode ME study

For those of you following the progress of the DecodeME study. We have recieved the following update: …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during February:

 

“Cold Weather & Pain in Fibromyalgia & Chronic Fatigue Syndrome”

https://www.verywellhealth.com/cold-weather-pain-fibromyalgia-3972975

 

New resource for patients with ME/Chronic Fatigue Syndrome

https://ow.ly/qUoL50Qz6nx

 

Disabled ID card

https://www.did-card.co.uk/?fbclid=IwAR1rnTk70JT-a3yrLAp9FWVWqpwYKJlqg600TMzolrPkmDEHsOP1MRhUBtQ

 

The Nanoneedle for …

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