For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during August:

 

News Roundup – UK-based Meta Analysis On Ivermectin Peer Reviewed and Published

https://www.youtube.com/watch?v=Q0G9Bxk495U&fbclid=IwAR1c95X4ND4UfogMn2s9qDlC8b6OsUHhpvG2cyMjsDxPe7Htm8zF5uM0z1A

 

The Psychologisation of Illness – Why Long Covid (and ME/CFS) Are Not ‘Just Anxiety’

https://www.youtube.com/watch?app=desktop&v=AKVWQljUJBQ&feature=youtu.be&fbclid=IwAR2aFsuihSSEW-UijT-CUpVOFvYfD2X8OyO_cakMvLP_j5baiAh-ISEPZVM

 

Chronic Fatigue Syndrome patients — it’s time to reconsider our attitudes

https://bjgplife.com/2021/07/23/chronic-fatigue-syndrome-patients-its-time-to-reconsider-our-attitudes/?fbclid=IwAR0GGuHNmxKKzbeddOGC3GKyag-cDADyucEY9bg4UknoNdcGK44DlEeGjn4

 

MEA statement re the development of the new NICE guideline on ME/CFS

https://meassociation.org.uk/2021/08/dr-charles-shepherd-stands-down-nice/?fbclid=IwAR2d0sT8OsTatcv7u3dxBJ2OGgJDq77KmGBBmGoGOTSlIL1lZkiOUWadALM

 

From DNA to drug development. Five success stories show the potential of DecodeME

https://www.decodeme.org.uk/how-studies-like-decodeme-lead-to-progress-in-diseases-five-success-stories/?fbclid=IwAR3JKexgkSKEOctZALsaNN20aldjTBJevuEAmhgRi4l2htPCXSdy-w38_DM

 

Equity for M.E./CFS

https://www.surveymonkey.co.uk/r/Petition4ME?fbclid=IwAR2XXlywKDZhZ9pZP60qgzigcR8u5a-jpU1eIBPMBTfo0yG0ngPnVFSrJ7k

 

Fibromyalgia is Associated with Impaired Balance and Falls

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2836495/?fbclid=IwAR367Yh7tEB3Ddp7TOShgTrdamR3z7RXpl_usjaujkM389581LV7RbIhm7Y

 

Martine McCutcheon bravely details her health battle – fans reach out

https://www.hellomagazine.com/healthandbeauty/health-and-fitness/20210812119424/martine-mccutcheon-details-health-battle-car/?fbclid=IwAR3hRFbiiro1dClff3RQQ0eFtVxjY5UG7mQF_gY6w8uoHpqvl0LJOC1lKMM

 

SHOWER IN A CAN: Get Clean & Fresh with our innovative Towel Free Tech™

https://www.shower-in-a-can.co.uk/?fbclid=IwAR1oOe5RlANF9EMagEj6VXSGaS8psCBvVh1-jv57o4eNS2Gf_mPMJNnobpw

 

Front Line COVID-19 Critical Care Alliance: Prevention & Treatment Protocols for COVID‑19

https://covid19criticalcare.com/?fbclid=IwAR2VLzp_IJQhjwdQJa-BYla1CeneW1IvpprqssHr1Qy5naXys9yK3MM7zv0

 

What “Phantom Nasal Congestion” May Tell Us About ME/CFS and Fibromyalgia

https://www.healthrising.org/blog/2019/10/14/phantom-nasal-congestion-chronic-fatigue-fibromyalgia/?fbclid=IwAR1f1QvfJVjghElDM4M1mV9S4nIj6vVYWd5mL4tJiB0UuYXAPDhlqBNZy4U

 

How Long COVID Is Helping Young Women With Chronic Fatigue Syndrome

https://www.refinery29.com/en-gb/2021/08/10616102/long-covid-chronic-fatigue-syndrome?fbclid=IwAR3R8alkE1enxbJj2inKXkZuBX1T7eYJco7cHh-v_YerxGgHpOFr-Yohgqo

 

Disputed therapies for myalgic encephalomyelitis abandoned

https://www.thetimes.co.uk/article/disputed-therapies-for-myalgic-encephalomyelitis-abandoned-r268lkv7x?fbclid=IwAR3I5RGDPqEkiM8QUfq_trsu2RqIMc2wzAdck4yDxkhMN7fx-Um179ee6ng

 

NICE pauses publication of updated guideline on diagnosis and management of ME/CFS

https://www.nice.org.uk/news/article/nice-pauses-publication-of-updated-guideline-on-diagnosis-and-management-of-me-cfs?fbclid=IwAR1JkVhdstCBRFxMvojzirIv8e994iRniNCV5NOR9q0AUcOWWqwDzonx_n0

 

UK health standards body delays new ME guidance in therapy row

https://www.theguardian.com/society/2021/aug/17/uk-health-watchdog-nice-delays-new-me-guidance-therapy-row-chronic-fatigue?CMP=Share_iOSApp_Other&fbclid=IwAR0iUGhjN6Yf99cuHc3Qu_i15OaINomrX8f1cJMKnV7fIblG_84ylwTHv2Q

 

 

Statement on the delay to publication of the NICE Guidelines on diagnosis and management of ME

https://meassociation.org.uk/2021/08/m-e-charities-baffled-by-last-minute-delay-to-nice-guideline-forward-me-announcement/

 

BBC Radio 4 – Today – News Item – NICE pause ME/CFS Guideline – 18 August 2021

https://www.youtube.com/watch?v=z8WJErQVdeY&t=9s&fbclid=IwAR0iUGhjN6Yf99cuHc3Qu_i15OaINomrX8f1cJMKnV7fIblG_84ylwTHv2Q

 

M.E. charities ‘baffled by last-minute delay’ to NICE Guideline – Forward-ME announcement

https://meassociation.org.uk/2021/08/m-e-charities-baffled-by-last-minute-delay-to-nice-guideline-forward-me-announcement/

 

Link between long Covid and ME could transform the lives of sufferers

https://www.thetimes.co.uk/article/the-link-between-long-covid-and-me-could-transform-the-lives-of-sufferers-ghft7x0jm

 

Petition: Publish the NICE ME/CFS Guideline Now

https://www.change.org/p/the-national-institute-for-health-and-care-excellence-publish-the-nice-me-cfs-guideline-now?utm_content=cl_sharecopy_30398303_en-GB%3A6&recruiter=2017366&recruited_by_id=bf50ccc0-f96a-11e3-9f09-b77a0f5fef20&utm_source=share_petition&utm_medium=copylink&utm_campaign=psf_combo_share_initial

 

Highlights of @DrSarahJarvis on BBC Breakfast talking about Long Covid and it being “very like ME” also mentions the delay of the NICE Guidelines for ME/CFS.

https://twitter.com/ABrokenBattery/status/1428994627059728387?s=04&fbclid=IwAR0kvbGLyMrBpsLKbjKcgMsqSzjRZgHNmUp6QgclEuaB2sRzj8IGRWl1Nik

 

Delay of British chronic fatigue syndrome guidelines is a setback for people with long Covid

https://www.statnews.com/2021/08/22/delay-british-chronic-fatigue-guidelines-setback-for-me-cfs-long-covid/?fbclid=IwAR226XMva78WNyIakH5iUat1fAt26asLncpJOKGSXTvub85AxZNu1ZtmK_M

 

Contact your MP about the NICE Guideline delay

https://meassociation.org.uk/2021/08/contact-your-mp-about-the-nice-guideline-delay/?fbclid=IwAR3bxpfEeslfszp14FzxeehhuG4J9K576_e8ihCLNV7o5fxPDMkTxFtXQJo

 

Woman’s Hour – Dr Nina Muirhead talking about ME and Long Covid on Woman’s Hour: starting 16 mins, 30s in.

https://www.bbc.co.uk/sounds/play/m000yyqb

 

Long Covid: ‘Even making my lunch is a challenge’

https://www.bbc.co.uk/news/av/uk-england-york-north-yorkshire-58249862

 

Sunday Times: ‘If we can’t agree on ME, we’ve got no chance against long Covid’ by Dr Phil Hammond

https://meassociation.org.uk/2021/08/sunday-time-if-we-cant-agree-on-me-weve-got-no-chance-against-long-covid-by-dr-phil-hammond/?fbclid=IwAR1MeTjmyGGyPY1-OQHXJdbQoY7_5xKSOe0MSKcye70Jts5Tn7tabBANx5E

 

Myalgic encephalomyelitis associated with cellular energy strain

https://medicalxpress.com/news/2021-08-myalgic-encephalopathy-cellular-energy-strain.html?fbclid=IwAR226XMva78WNyIakH5iUat1fAt26asLncpJOKGSXTvub85AxZNu1ZtmK_M

 

When People Expect Me to ‘Get Over’ My Fibromyalgia

https://globalhealthmagz.com/when-people-expect-me-to-get-over-my-fibromyalgia/?fbclid=IwAR1vhT7zoNq_EXS5Oo_WXGRj1XAqgqSPDgUr8NuqrGqpUNlGsGQECU0Wd_o

 

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management

https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext?fbclid=IwAR3r0XMgwDQJNnobHk1ClcUUOWLrq2naJlku0v3nc5A98Tz86vFZmgplYO8

 

The Improving Access to Psychological Therapies (IAPT) Programme and The British Psychological Society (BPS)

https://davidfmarks.com/2021/08/24/the-improving-access-to-psychological-therapies-iapt-programme-and-the-british-psychological-society-bps/?fbclid=IwAR2_w5GKL2l2DFg_1wrt5lJ_68747TuiwQFsT4hzqpJogSuNAD4Xn-glOHk

 

Raise your voice: Self Advocacy Workshop for people affected by M.E.

https://www.alliance-scotland.org.uk/blog/events/raise-your-voice-self-advocacy-workshop-for-people-affected-by-m-e/?fbclid=IwAR3S6A1khbU1AC9i50NUQObuAzFO1PCBfGsByvTiNq8WIz0bWWUyWVxLVVY

 

Public Letter to DHSC, MHRA, HoC, NICE: Call for a ‘Medical Regulatory Agency’

https://doctorswith.me/public-letter-to-dhsc-mhra-hoc-nice-call-for-a-medical-regulatory-agency/

 

Pfizer and AstraZeneca vaccine protection starts to wane within six months, study suggests

https://www.chroniclelive.co.uk/news/uk-news/pfizer-astrazeneca-covid-vaccine-protection-21394390?fbclid=IwAR2_w5GKL2l2DFg_1wrt5lJ_68747TuiwQFsT4hzqpJogSuNAD4Xn-glOHk

 

Chronic Pain Services in Scotland survey

https://www.alliance-scotland.org.uk/blog/news/chronic-pain-services-in-scotland-survey/?fbclid=IwAR1ttQD2yKAoqgxFG0YqGHeSD3n77hTUhk32HAFfoDVF9G3Bzk4DBn24qcQ