For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during January:

 

Could microclots help explain the mystery of long Covid?

https://www.theguardian.com/commentisfree/2022/jan/05/long-covid-research-microclots?fbclid=IwAR2tdtN-7HeINk9Nv5F6bAJotjDBLS2TDvhk6-A-bJLRl3Kw60rH0RpY3dw

 

Coronavirus: Estimated 1.3 million people in UK suffering from long COVID, ONS figures show

https://news.sky.com/story/coronavirus-estimated-13-million-people-in-uk-suffering-from-long-covid-ons-figures-show-12510052?fbclid=IwAR2MsvHNJeQOOyH0t-1TeeTuHrhKMJDP7zm3eENAyVwTvCWEjm16Syt4d3M

 

Fast Five Quiz: Chronic Fatigue Syndrome (Myalgic Encephalomyelitis)

https://reference.medscape.com/viewarticle/964792_6?src=soc_fb_share&fbclid=IwAR2tuxd3LbbLLM6MVHubilYAPjqEfnIz-YcjVbB_AEj8HORUJBUqw_0eMrE

 

Twitter: Long Covid Kids Scotland on STV News

https://twitter.com/LCKScotland/status/1480629323543773184?s=20&fbclid=IwAR1fweo8rlC2cR5CtJ1HUC4kpYdqNCimT-2UbFN8NsQ64sVY_1AIMLjcEAc

 

Explaining Fibromyalgia to Friends Who Wonder Why They Don’t Hear From Me

https://themighty.com/2017/03/explaining-fibromyalgia-symptoms-letter-to-friends/?utm_term=Autofeed&utm_medium=ChronicIllness_Page&utm_source=Facebook&fbclid=IwAR0biQ_cUryJotP_bGsUIHsY4Z-upMBwHKV5cdXj096hoB6ih9ysU035PVs#Echobox=1641717970

 

Free Booklet: An ME Association Summary of the New NICE Guideline for ME/CFS

https://meassociation.org.uk/2022/01/free-booklet-an-me-association-summary-of-the-new-nice-guideline-for-me-cfs/?mc_cid=b9f5226ba1&mc_eid=2c6268df9b&fbclid=IwAR0DeEIZqAVw4fkCGgyNy6HRXXcNjckEPmisdf0wfLCTXTUr4N3yOMUCNkA

 

Irritable Bowel Syndrome (IBS): Summary of discussions

https://forums.phoenixrising.me/threads/irritable-bowel-syndrome-ibs-summary-of-discussions.84970/?fbclid=IwAR1fweo8rlC2cR5CtJ1HUC4kpYdqNCimT-2UbFN8NsQ64sVY_1AIMLjcEAc

 

The surprising connection of Fibromyalgia with diet Coke and Pepsi

https://fibromyalgiaresources.com/fibromyalgia-coke-pepsi/?fbclid=IwAR3iy6aBGN9o14yykCaEHYiJLyyACCNEIKFlj2LiBld3bycSP9tsZvZ7XpI

 

Onderzoek naar langdurige COVID, deel 2: studies blijven aantonen dat langdurige COVID en ME/cvs nauw met elkaar verbonden zijn

https://www.me-gids.net/nieuwsartikel/onderzoek-naar-langdurige-covid-deel-2-studies-blijven-aantonen-dat-langdurige-covid-en-me-cvs-nauw-met-elkaar-verbonden-zijn/?utm_source=dlvr.it&utm_medium=twitter

 

Putting it into Practice: What NICE ME/CFS means for GPs

https://doctorswith.me/nice-gp-update/?fbclid=IwAR0wF5izTEXqsGag06mDhJ3ayOtVigbU8I3sZw373S9btGhBLvxnQcfr3uo

 

Circadian rhythm disruption in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Implications for the post-acute sequelae of COVID-19

https://www.sciencedirect.com/science/article/pii/S2666354622000023?fbclid=IwAR0xQrihe4NXIiJT859Mqkr-rJfSLtSTFRYjbsyR25XepKtk93IATBBbPfs

 

Edinburgh actor Mark Bonnar wins thousands on Celebrity Catchphrase for charity

https://www.edinburghlive.co.uk/news/edinburgh-actor-mark-bonnar-wins-22767182?fbclid=IwAR3iy6aBGN9o14yykCaEHYiJLyyACCNEIKFlj2LiBld3bycSP9tsZvZ7XpI

 

Epstein Barr virus (glandular fever) may be leading cause of MS

https://meassociation.org.uk/2022/01/epstein-barr-virus-glandular-fever-may-be-leading-cause-of-ms/

 

FMA UK Helpline details

https://www.facebook.com/ukfibro

 

16 Ways to Imagine What Fibromyalgia Disorder Feels Like

https://fibrowomen.com/16-ways-to-imagine-what-fibromyalgia-disorder-feels-like/?fbclid=IwAR3SgcWPJLCdv7tVH4UNCZonuODd8LqZZSVgf1gAiJxfHkkmx3LNoi67Wlc

 

Het oog als venster op long Covid…en misschien ME?

https://mecentraal.wordpress.com/2022/01/19/het-oog-als-venster-op-long-coviden-misschien-me/?s=08&fbclid=IwAR0SfsdNv_Pz6GDOyVv-QknxudrjaYKWM-Vuc98UuP1d6MQnujIwcofxeDE

 

Long Covid: Six risk factors increasing the likelihood of brain fog

https://meassociation.org.uk/2022/01/long-covid-six-risk-factors-increasing-the-likelihood-of-brain-fog/?fbclid=IwAR3tAasRwN9lZtYpyoBWzPc5XBSiELGrveO8zq9IxUjMLxjAcTfaGsDGnLY

 

Covid ‘Brain fog’ could be a result of virus affecting spinal fluid

https://www.msn.com/en-gb/health/medical/covid-brain-fog-could-be-a-result-of-virus-affecting-spinal-fluid/ar-AASZkXs?ocid=sf

 

Covid Scotland: Scottish Government invest £55,500 to provide free badges and lanyards for people who want more space in public

https://www.edinburghnews.scotsman.com/health/covid-scotland-scottish-government-invest-ps55500-to-provide-free-badges-and-lanyards-for-people-who-want-more-space-in-public-3537790?fbclid=IwAR0zek_0fYYs5wMH71IfNuZXDiKZ4pdi7J5SKNl25VRSXCnL26P7C6LG904

 

Cambridge ME Support Group chair welcomes Moderna vaccine trials for Epstein-Barr virus

https://www.cambridgeindependent.co.uk/news/cambridge-me-support-group-chair-welcomes-moderna-vaccine-tr-9236521/?fbclid=IwAR3Z-HdncHyW1OBRNdk_1rpzz-WIQwnF1a036tnGmb88pT5xqEVPxSLuQK0

 

Trial By Error: Q-and-A with Natalie Boulton, Director of “Dialogues for a Neglected Illness”

https://www.dialogues-mecfs.co.uk/films/prologue/?fbclid=IwAR2-mdkmKHD2WQNfgwjpPilYbJ5eBJEt1aqaCGLT5YrHULtQHizO5KILpxo

 

Coronavirus (COVID-19): distance aware scheme

https://www.gov.scot/publications/coronavirus-covid-19-distance-aware-scheme/?utm_source=redirect&utm_medium=shorturl&utm_campaign=distanceaware&fbclid=IwAR3VCPQFxZwZUCBR9qvdoD5ZBYniliDtw2u87x1Z_s82fEKdJ-g5jbGI0dM

 

2022 – The Year Ahead Pt. I: The Long COVID Research Boom

https://www.healthrising.org/blog/2022/01/24/2022-the-year-ahead-pt-i-the-long-covid-research-boom/?fbclid=IwAR0t6H6Bwa84a0hn0KkfW_4SQFPvw8kObfiEFztFiOqxdscIy4TV9Voh2YI

 

Chris Armstrong en de jacht op de metabole basis van ME/cvs

https://www.me-gids.net/nieuwsartikel/chris-armstrong-en-de-jacht-op-de-metabole-basis-van-me-cvs/?utm_source=dlvr.it&utm_medium=twitter

 

Endothelial Dysfunction & Brain Fog

https://batemanhornecenter.org/endothelial-dysfunction-and-brain-fog/

 

Long Covid: doctors find ‘antibody signature’ for patients most at risk

https://www.theguardian.com/society/2022/jan/25/doctors-find-antibody-signature-long-covid?CMP=Share_iOSApp_Other&fbclid=IwAR2tdtN-7HeINk9Nv5F6bAJotjDBLS2TDvhk6-A-bJLRl3Kw60rH0RpY3dw

 

Experiences of alternative pathways in primary care

https://yourviews.parliament.scot/health/alternativepathways-survey/consult_view/?fbclid=IwAR2v3Oir9Dsm1bsVnh9H5ngiTl9TeiiMJQsr3aOgEjjGpi7Np6VmLHqZEBc

 

DWP announces changes to the way PIP claims will be assessed

https://www.chroniclelive.co.uk/news/uk-news/pip-assessment-change-record-dwp-22891436?fbclid=IwAR1fweo8rlC2cR5CtJ1HUC4kpYdqNCimT-2UbFN8NsQ64sVY_1AIMLjcEAc

 

Long Covid: Hidden lung damage spotted on scans

https://www.bbc.co.uk/news/health-60154398?fbclid=IwAR0bxMMY7JO8CwGUrEPP4U5mWwevOwcNRZfI03PNRfGUjv9sZC_cd8E7hWQ

 

Changes to Personal Independence Payment in Scotland

https://www.mygov.scot/changes-to-personal-independence-payment-in-scotland?fbclid=IwAR2IBneljesCR19mScMFidFObSu7GYqmGZs7JkBNoMPTJZKOVVfZ9l9Z1_k