For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during May:

 

Medical Matters – Health questions answered by our experts:

https://meassociation.org.uk/medical-matters/?utm_medium=email&utm_source=getresponse&utm_content=ME%20Association%3A%20Medical%20questions%20answered&utm_campaign=Newsletter&fbclid=IwAR2RrZ6yPbVc8Lg0kzuq0QlnYn5sdTvQeq-FISrc1IFzKHjFUL7ECJS-cNw

 

A new template letter has been produced to help people with ME/CFS to be considered clinically vulnerable from COVID-19.

https://meassociation.org.uk/wp-content/uploads/Template-Covid-19-ME-CFS-Clinically-Vulnerable-Letter-April-2022-1.pdf?utm_medium=email&utm_source=getresponse&utm_content=ME%20Association%3A%20Medical%20questions%20answered&utm_campaign=Newsletter&fbclid=IwAR1gglJnRPuggP5VRGjaKg0gkgHIapbdRnmFnuDH_XkPgyaJlJ0uNaRUzJ4

 

Clinical improvement in patients with ME/CFS with synergistic effect of colchicine and spironolactone targeting inhibition of inflammasome activity

https://onlinelibrary.wiley.com/doi/10.1111/imj.23_15766

 

Success! Nath Reports the Big ME/CFS Intramural Study Points to Possible Treatment Options

https://www.healthrising.org/blog/2022/05/06/nath-intramural-study-exercise/?fbclid=IwAR0q7ZaFXPQBQDnseukx9dUmPHhUJEJFmJhH8xn8TFZXJaRrpC_IzbMiw_c

 

Quest for a pioneering treatment for children with long covid

https://northwestbylines.co.uk/news/world/quest-for-a-pioneering-treatment-for-children-with-long-covid/?fbclid=IwAR1PJ8v_RrlD9JYmkYe2u0q31ORpurKp8OGaL3KlNSqIuiFkjRhGnWy8JLw

 

Chronic pain: The ‘unbearable’ condition affecting one in four

https://www.bbc.co.uk/news/health-61309962?fbclid=IwAR2AAxywEWiJ1xOoaIHWS8PuJec6txtnaywwfyuWCiXvcDDWvFY3p5ZHM-U

 

The Tangled Story of ME/CFS

https://www.dialogues-mecfs.co.uk/films/the-tangled-story-of-me-cfs/?fbclid=IwAR3JZVr7KzJij-p4aLVpg6gNSzi12i9mk_EMgocEiFe4mWk-ksISWN0Wf9Q

 

Plasma metabolomics reveals disrupted response and recovery following maximal exercise in myalgic encephalomyelitis/chronic fatigue syndrome

https://insight.jci.org/articles/view/157621?s=09&fbclid=IwAR15YX0_kTQPWvWhRcDgfDmSQ7dSC3qkgud9-r4axFek4E4m9O5zUfvRtzw

 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Announcements

https://questions-statements.parliament.uk/written-statements/detail/2022-05-12/hlws23?bblinkid=260704464&bbemailid=40166659&bbejrid=-1944057256&fbclid=IwAR2BSqaYCX616EGcOY9QODXW5LlD7j777AsQ9LioSptzEOm5uqE9oa35KI4

 

The Times: Sajid Javid promises radical action for patients debilitated by ME

https://meassociation.org.uk/2022/05/the-times-sajid-javid-promises-radical-action-for-patients-debilitated-by-me/

 

Relative’s suffering triggered Sajid Javid’s ME crusade

https://www.thetimes.co.uk/article/relatives-suffering-triggered-sajid-javids-me-crusade-6th2nv6wl?s=09&fbclid=IwAR24yobTPqIev7BpcYthvYioEvBuWrMdUH8Y_tyellxXOELAFi2jBkfKN1k

 

Cost of living: Prescription charges will be frozen for the first time in 12 years to help ease crisis

https://inews.co.uk/news/cost-of-living-prescription-charges-frozen-first-time-in-twelve-years-help-ease-crisis-1630595?fbclid=IwAR1wL_jWBsbXZTqscb8hwW6ZqbhnU-vqAZQtbwYs4inyHOBGFPwG52JdHUE

 

How to Move From Resignation to Acceptance

https://www.psychologytoday.com/us/blog/turning-straw-gold/202205/how-move-resignation-acceptance?fbclid=IwAR0TtjifO_8T48HfzScHwHpmenM03NMZylbl7uKQFVuEmxWAW7YV_Exotiw

 

Chronic pain sufferer given hope after 13 years

https://www.bbc.co.uk/news/uk-england-hampshire-61511558?fbclid=IwAR1wL_jWBsbXZTqscb8hwW6ZqbhnU-vqAZQtbwYs4inyHOBGFPwG52JdHUE

 

DGMEFM Network Consultation Findings Report

https://dgmefm.org.uk/2022/05/20/dumfries-and-galloway-me-and-fibromyalgia-network-consultation-key-findings-final-report/?fbclid=IwAR3uuPxhqoh28OEJJA75TsMxWzzi927Onq_L3E_Aj58ooYT2T2j-743YW4Q

 

Equality Act 2010 Guidance

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/570382/Equality_Act_2010-disability_definition.pdf?fbclid=IwAR25KX2Ee39Is8PyCd2DR4oWWWtB6gZBAOtjioPmooNg_lD603MWdhKfTSo

 

Fibromyalgia Bruxism (Teeth Grinding)

https://www.fibromyalgia-symptoms.org/fibromyalgia_bruxism.html?fbclid=IwAR3AxrAyPlWzFztr0Ni9aOMnPNxpH0GmNjdUfnu2SkHxr98xZLlOBQWXcHQ

 

2022 Neurosarcoidosis Patient Day

https://www.sarcoidosisuk.org/information-hub/neurosarcoidosis-patient-day-2022/?fbclid=IwAR1PJ8v_RrlD9JYmkYe2u0q31ORpurKp8OGaL3KlNSqIuiFkjRhGnWy8JLw

 

Help and support for you

https://www.actionforme.org.uk/get-support-now/help-and-support-for-you/listen-to-me-project/?fbclid=IwAR0Dz7F7ca6M6nx4_n1XUpX80iiEYfK3S5yOW0srKqQD21llOjq_fCsOPv4

 

Cost of living support factsheet: 26 May 2022

https://www.gov.uk/government/publications/cost-of-living-support/cost-of-living-support-factsheet-26-may-2022?fbclid=IwAR2d5gdyl-KqGlcsnDT8lPCispGVP1_1u0Nm-ZwSILL7jboxGF4hQOePb7Y

 

Befriending Service – Referral Criteria

https://www.befriending.org/about/referral-criteria/

 

‘Doctors need to start believing us’: This is what ME patients say Sajid Javid needs to change

https://inews.co.uk/inews-lifestyle/me-patients-sajid-javid-needs-to-change-1655018?fbclid=IwAR1ffcWtao2pLmu6s2xYH-b4DaQz1Dfloj3t2TgOsqHujG0cTaBKwRc7xws

 

What happened to Kirsty Young? BBC presenter’s ‘severe and relentless’ pain explained

https://www.hellomagazine.com/healthandbeauty/health-and-fitness/20220530141560/kirsty-young-platinum-jubilee-health-battles/?fbclid=IwAR24yobTPqIev7BpcYthvYioEvBuWrMdUH8Y_tyellxXOELAFi2jBkfKN1k

 

Record 2 million people in UK estimated to have long Covid

https://shared-news.upday.com/?streamType=breaking&edition=en&teaserId=c9afabe2-b3ae-4a89-b381-510abc378e80&articleUrl=https://news.upday.com/uk/record-two-million-britons-have-long-covid/?utm_source%3Dupday%26utm_medium%3Dreferral

 

drmartinaziegenbein on TikTok

https://www.tiktok.com/@drmartinaziegenbein/video/7104339596397382955?_t=8Snz1D9YSb0&_r=1