For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during August:

 

Update: The ‘Recovery College’ withdraws outdated information on ME/CFS

https://meassociation.org.uk/2022/08/recovery-college-information-on-me-cfs-the-mea-writes-to-request-a-rewrite-of-their-online-educational-material/

 

BBC Radio Scotland: MS GB FINALIST – We’ll speak to Bishopton mum Sarah Victoria Bayley who’s in the running to become the first Ms Great Britain with a disability

https://www.bbc.co.uk/programmes/m0019s5r?fbclid=IwAR1PmLhaMRAinB9zsya_pjsvg52fQhpbJOp1wmZ3JFia-0MaOLqqq8mmqH8

 

Position Paper – World ME Alliance do not endorse the Lightning Process

https://www.actionforme.org.uk/news/we-%E2%80%9Cdo-not-endorse-the-lightning-process%E2%80%9D/

 

Hidden Disabilities: The True Cost?

https://www.itv.com/news/2022-08-04/hidden-disabilities-the-true-cost?fbclid=IwAR3lNybeIxEjRKIGxBPA7RZnIZ6KGxLq8TZgBJ7bddOw8OYAYCp6gE9HKSk

 

Need for better fibromyalgia services highlighted in new study

https://www.nationalhealthexecutive.com/articles/need-better-fibromyalgia-services-highlighted-new-study?fbclid=IwAR0_x1btjzhsV9lZ2rG3VcWmHx7dPlIri4l7gWcYuv_Q1dmvtYPSMrH6Pik

 

Is the Entire Autonomic Nervous System Messed Up in Fibromyalgia?

https://www.healthrising.org/blog/2022/08/06/fibromyalgia-autonomic-nervous-system/?fbclid=IwAR2VoMQdEbooUCv1PMSOo3nKJiRp-HEF9sxCJmLSumoSoW6rWBBb0T3VeEk

 

How I Thrived When Forced to Quit My Job Due to Chronic Illness

https://solobuildit.com/blog/quit-job-chronic-illness/?fbclid=IwAR2Rcr0ARRPNm442mORMzGe5TvTjwysQ9PAunv4f-bWwXMmbSP4AcC_8mLY

 

Kings College Hospital ME/CFS service – MEA raises concerns about their website information on ME/CFS

https://meassociation.org.uk/2022/08/kings-college-hospital-me-cfs-service-mea-raises-concerns-about-their-website-information-on-me-cfs/

 

A Treatment for Fibromyalgia: the Next Best Thing to a Cure

https://www.living-smarter-with-fibromyalgia.com/?fbclid=IwAR2Py8Q7gMHPi1EM_2iVj4bK2v4XmejFGraTUHx9nU5CSMWYYN8cDVWCMHY

 

Q&A with Dr Nick Gall

https://www.youtube.com/watch?v=oyzy3H2d1Pc

 

Anthony Komaroff speaking about the IOM report (2015). They spent a year and $1M reviewing nearly 9000 published articles and concluded that ME/CFS is not a psychological disorder.

https://www.tiktok.com/@abrokenbattery/video/7134598531834236165?_r=1&_t=8V2gvdmK7oD&is_from_webapp=v1&item_id=7134598531834236165

 

I’ve been ‘quiet quitting’ for years due to chronic illness, I’m glad hustle culture is on its way out

https://inews.co.uk/opinion/quiet-quitting-chronic-illness-hustle-culture-1807777?fbclid=IwAR0EDG2ZpO-9F7CnaZ4SDCfNKum0SaCF6nKDQQoIs5oXusHx3NEbEOBmZSk

 

The Lymphatic System And Chronic Pain Management

https://www.living-smarter-with-fibromyalgia.com/chronic-pain-management-lymphatic-system.html?fbclid=IwAR083M_ZOIwJniljzGGXzSmygmixBFpHobOST1HQQGUS0toixf_BTsEp_SE

 

NHS RECOVERY COLLEGE PUBLISHES NEW INFORMATION AND GUIDANCE ON ME/CFS

https://meassociation.org.uk/2022/08/nhs-recovery-college-publishes-new-information-and-guidance-on-me-cfs/?fbclid=IwAR0lz5sJNQfHVyaBiLp4jaN7kM5MfyMXcX4gF-oh4aFhUqlerTdzQM9_Y_o

 

Update on the saga of the disability walker

https://dgmefm.org.uk/2022/08/20/update-to-the-august-blog/?fbclid=IwAR2Rcr0ARRPNm442mORMzGe5TvTjwysQ9PAunv4f-bWwXMmbSP4AcC_8mLY

 

Scottish benefit applicants will not face ‘degrading functional examinations’

https://meassociation.org.uk/2022/08/scottish-benefit-applicants-will-not-face-degrading-functional-examinations/