For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during September:

 

Change.org petition – Cochrane: Withdraw the harmful 2019 Exercise Therapy for CFS review 

https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review?recruiter=false&utm_source=share_petition&utm_medium=facebook&utm_campaign=psf_combo_share_initial&recruited_by_id=941409f0-4c2b-11ee-8283-d18513de4f93&share_bandit_exp=initial-37328455-en-GB&utm_content=fht-37328455-en-au%3A0 

  

Hypersensitivity to noise and sound are common symptoms of ME/CFS, but could they be used to differentiate ME/CFS from other conditions such as MS? 

https://www.meresearch.org.uk/noise-and-light-hypersensitivity-in-me-cfs/?fbclid=IwAR19ohbSxRF0HzU-ebW_kHrC5oqluWfs8TjaGaRh1R5kO_dkTFAXV2qoUHc 

  

Recently, ME Research UK covered a systematic review which compared post-treatment Lyme disease (PTLDS) with ME/CFS 

https://www.meresearch.org.uk/how-similar-are-me-cfs-and-post-treatment-lyme-disease/?fbclid=IwAR3qampCJ0G7Y-O0zeW7oi2atC3YLR7t1Z7L5WJs69yGsLpJwTvc2PvH2VU 

  

Easy-read versions of the DHSC’s ME/CFS Interim Delivery Plan and Consultation are now available 

https://www.gov.uk/government/consultations/our-plan-to-improve-the-lives-of-people-with-mecfs-easy-read?fbclid=IwAR3nRw-LUyyn1v5rFFcrYRfjq9UegqjeOcQzh-OGYtInvpmI6Crc1mslWSU 

  

ME Research UK is delighted to announce funding awarded to Prof. Janet Taylor and colleagues at Edith Cowan University for a new project investigating spinal nerve function in ME/CFS 

https://www.meresearch.org.uk/research/taylor-064/?fbclid=IwAR3KnpnwbgfHJhnxT6wD2UZyjebEdORreItGoikHertDpk-dLValxBwPnU8 

  

Fibromyalgia researchers say discovery could change treatment of chronic pain 

https://stayfit247.info/fibromyalgia-researchers-say-discovery-could-change-treatment-of-chronic-pain/?fbclid=IwAR0Td1nH_naC79EMoikV4D3N8Gr8Vz5ChjN2Wh5Y2kdvTYm11iLhIG7aEGQ 

 

BBC Morning Live featured a piece on fibromyalgia. Dr Punam spoke about the condition; how it affects people, the difficulty in diagnosis and treatment options 

http://www.fmauk.org/latest-news-mainmenu-2/articles-1/27-awareness-articles/1532-fibromyalgia-featured-on-bbc-morning-live?fbclid=IwAR0AFfzOG2hkNl93zL0RYpphLadDXwHE0LtIRjCbmjKMZqTiJJI_Yt8rVIM 

  

ME Research UK have published an article on building a brighter research future – step by step… 

https://www.meresearch.org.uk/step-by-step/?fbclid=IwAR0t4hQbMzBC8UkvjfhIhMaR8OgO3N_uvjjr6fX2P11QnFDk5ZZexrW4wJE 

  

Branching Out is an outdoor nature based programme of activities for any adult 18+ who use mental health, alcohol and drugs services or have a long term health condition in Dumfries and Galloway. 

https://dgdoingmore.co.uk/how-to-do-more/branching-out/?fbclid=IwAR2VXklYD5Txx78nDoFX8svNVPowgRA3HTLyeZOmsgSjPRIMjh7GNzAw7Og 

  

The ME Association is highlighting a webinar to be held on 11th November at 1pm. The topic is ‘Long Covid Misconceptions with Dr Charles Shepherd and People with Lived Experience’ 

https://meassociation.org.uk/2023/09/webinar-long-covid-misconceptions-with-dr-charles-shepherd-and-people-with-lived-experience/?fbclid=IwAR1D8L8cglXrg5C95NmwFrErHzkfOOLKgbB8GEc9KENRX0NsYKPJ7XPxxDU