For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during June:

 

Carers UK is organising this open letter on behalf of unpaid carers across the UK. 

https://www.carersuk.org/news-and-campaigns/general-election-2024/open-letter-to-the-future-prime-minister?fbclid=IwZXh0bgNhZW0CMTEAAR0r1KDq6tPjmviD57X3Yka1jXHPKHrZIyoZcsoKHfe2SNpnyPyyyrkCaFI_aem_F3R6UJW6sn1jubHXN2Mlog

 

The ME association have created a new support pack for anyone with ME/CFS going to hospital.

https://meassociation.org.uk/2024/05/a-new-support-pack-for-anyone-with-me-cfs-going-to-hospital/?fbclid=IwZXh0bgNhZW0CMTEAAR2dVbfF9R9p0b-gaNhUoRjSXcZqG5lqe4G_sUCk6hOTAZ_pds-5Gfv-E5w_aem_jPRKqrFzMe_9ThlRV2D_NA

 

Childhood trauma and risk for chronic fatigue syndrome: association with neuroendocrine dysfunction

https://pubmed.ncbi.nlm.nih.gov/19124690/

 

This series of podcast episodes complement the CPD accredited module on Myalgic Encephalomyelitis (ME/ Chronic Fatigue Syndrome (CFS).

https://www.buzzsprout.com/1717775?fbclid=IwZXh0bgNhZW0CMTEAAR2017ze-yRmTyE4OMMuKP9aRyeYHDOKKgHgRJrgr5KfEHYfYVOe_AsqF4U_aem_Qj1WO7gi1I99LrXNR9nXEA

 

AccessAble gives you the accessibility information you need to work out if a place is going to be accessible for you.

https://www.accessable.co.uk/?fbclid=IwZXh0bgNhZW0CMTEAAR3Z83GohqKZgnWRKCGvCbrRmbvicTf228k8Rahuu3L8B36go93CNDbuz-Q_aem_QhMRFyHIc2EhNgmqnv386Q

 

A blood test will diagnose fibromyalgia more reliably

https://www.eurekalert.org/news-releases/1036432?fbclid=IwZXh0bgNhZW0CMTEAAR0XvWPpSUdMFp1UdQ4ckqeU8-PeN7_4QDs1GOUEiFnJTt1urqR5m18tXI0_aem_onjLEg2tTIFljflBMPQqng

 

The ME Association is funding a study led by Prof Sarah Tyson of University of Manchester (who also has ME) to develop a clinical assessment toolkit in collaboration with people with ME and clinicians who work in NHS ME/CFS specialist services.

https://www.qualtrics.manchester.ac.uk/jfe/form/SV_becvOoFYEA9WJTw