For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during September:

 

Research Opportunity

https://exe.qualtrics.com/jfe/form/SV_bjyGOweSJVw7vx4?fbclid=IwY2xjawFwpt5leHRuA2FlbQIxMQABHVM6_YkQ7DQryFGV7KFD9Q0t9d5mIiD9-Zfdrd2PbmjoCExyVTici_UoIQ_aem_ywd-Zk3GGabwTjs0-kiwIg

 

Help the British Psychological Society develop good practice guidelines for ME/CFS

https://meassociation.org.uk/2024/08/british-psychological-society-good-practice-guidelines/?fbclid=IwY2xjawFwp4BleHRuA2FlbQIxMQABHfs76eEEt4X5gqWfHE-0joQPuBpPi6GKlqA-qGVDfJNDZwaEqmxVQrPJ1g_aem_gAvq7X2knHagVF-GxZslGA

 

ALLIANCE responds to Adult Disability Payment Review consultation

https://www.alliance-scotland.org.uk/blog/news/alliance-responds-to-adp-review-consultation/?fbclid=IwY2xjawFwp_RleHRuA2FlbQIxMQABHQz6YUqUTqC4di8YxaMPWromBNg7-g_v7YI3M9HAX1TvFsNEhGC4_i_Cbg_aem_lDLhbKjO7RAkWFryL9xRCQ

 

New tool detects changes in gut health to help prevent disease

https://www.earth.com/news/new-tool-detects-changes-in-gut-health-to-help-prevent-disease/?utm_source=pocket-newtab-en-gb&fbclid=IwY2xjawFwqEtleHRuA2FlbQIxMQABHftGsRk20LKdh9GdRoj5iieuqPu0bEtP7SbsvREqr5f7WZrgcKmywqYc_Q_aem_1gjh0T4nK2JbzWz1b27RBw#google_vignette

 

Writing a children’s book featuring a protagonist who has ME

https://meassociation.org.uk/2024/09/writing-a-childrens-book-featuring-a-protagonist-who-has-me/?utm_campaign=Newsletter&utm_content=Writing+a+children%E2%80%99s+book+featuring+a+protagonist+who+has+ME&utm_medium=email&utm_source=getresponse&gr_s=BVdTlao&gr_m=BWpXKW&gr_x=a62b&fbclid=IwY2xjawFwqNNleHRuA2FlbQIxMQABHX_AFtZDZhZJOSTf6rO5UCYbVsYkSueJPv9bVjcoslPqMfZDM8_5sNUotA_aem_1o_TOOhLaHowoOIcJbu4nQ

 

Research: The Index of ME Symptoms (TIMES) for ME/CFS

https://meassociation.org.uk/2024/09/research-the-index-of-me-symptoms-times-for-me-cfs/?fbclid=IwY2xjawFwqP5leHRuA2FlbQIxMQABHWV5miTIFBaYUJ2iO0gd0q6_mHeVZmeOywTg6J6Jf0IbBXYVvViAdMSASA_aem_BzUWkz9L0a3mpcUHZ7C_Yw

 

 

Fibromyalgia Syndrome Assessment and Diagnosis

https://www.ruh.nhs.uk/documents/RNHRD/Fibromyalgia_Syndrome_Assessment_and_Diagnosis.pdf?fbclid=IwY2xjawFwqV1leHRuA2FlbQIxMAABHTU8fzMMXJfXJmk3zRUgxMHxO23VNXO8WkQIiWuW8f0xJh9kMPrspV8u5g_aem_p1-z0V9Sza0F-n0Z3k69lw

 

Quick guide to Fibromyalgia scoring (from Torbay and South Devon)

https://www.torbayandsouthdevon.nhs.uk/uploads/quick-guide-to-fibromyalgia-scoring.pdf?fbclid=IwY2xjawFwqZ1leHRuA2FlbQIxMAABHXS0fQW9bKC_fcsxeLmgeEgSCJ4wHIrWnGj_vOFo9y5i7CFsJTskdDDVlQ_aem_VBuCc68QYRVGatL0hu5WwQ