For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during April and May:

 

Earlier diagnosis and better care needed for ME and Long COVID patients, report finds

https://news.exeter.ac.uk/faculty-of-health-and-life-sciences/earlier-diagnosis-and-better-care-needed-for-me-and-long-covid-patients-report-finds/?fbclid=IwY2xjawKqdBxleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR4frviZpwROH9AXVJhKqGKXDzCO5-j_CK-dU1rVfH_3YXbouzjytyxU-m-a1w_aem_pvnJK_7tcYSkVDYB6TrasA

Millions Missing Scotland 2025: Red alert for ME

https://www.meaction.net/2025/04/27/millions-missing-scotland-2025-red-alert-for-me/?fbclid=IwY2xjawKqdWBleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR6bJxRll69dHsWTDESP6VzN2tfH3Xmm9Bd4vKSZPInredel5qQESAVhZ02Fhg_aem_R02G21fYFDHKqdd9vkDsvg

FMA UK Newsletter

https://preview.mailerlite.com/n7l0d0n8p5/2733658648231287033/d9u7/?fbclid=IwY2xjawKqdYJleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR6-a4skVa4eLvjnB96a2Smq-RRYvpku5CwNhwYHG84RwQ1orYOANmK1t33h0g_aem_GSThH7OtVpKBLh5ehuBgAA

Free Upcycling workshops by SHAX

https://shax.org.uk/upcycling-remakery/?fbclid=IwY2xjawKqdg5leHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR5T7Q-g53Nfq9oEleN0O76SzUsjtKKt7SeJIPKVA6mZ88qYh2EOOzSbfJZHRg_aem_jIWSTARR_ql9NlXgEQjaBw#events

Health: Long Term Conditions Framework Consultation

https://consult.gov.scot/healthcare-quality-and-improvement/long-term-conditions-strategy/?fbclid=IwY2xjawKqdoFleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR7ltniI9z3VTpLsWrNjokHpY9E8mu8qZTbMq96qyBSX2NacIxMBqNdrDYzZ0w_aem_XYBzFJZwoUDNXoxT2Vi_lA

A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform

https://organise.network/actions/petition-a-proposal-for-an-me-cfs-long-c-xWkB_pcn/saf/take-action?utm_source=share&utm_medium=native&utm_campaign=505a358c-8a1d-48ff-b55c-847346df5fe9

Join the Conversation About Dumfries and Galloway Council’s Litter Strategy

https://www.solwayfirthpartnership.co.uk/join-the-conversation-about-dumfries-and-galloway-councils-litter-strategy/?fbclid=IwY2xjawKqdvxleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR7ViuHesUIVSQmiPsngRlC9qNB2bsmgjwb5ullo-8V1xP4q9Hrh3cDI4dkBxw_aem_OP5i2lpBcC8Xj59giMShNg

Latest Benefits and Work Newsletters

https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1193307&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0&fbclid=IwY2xjawKqd0pleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR43-A1m5rJelHVmvGIWI48wBcIR4OsWudFN3o3EvTxFoqf4ibfRzgcW77IrLQ_aem_7z6-fQitAjzqgCPGhihgUQ

https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1193538&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0&fbclid=IwY2xjawKqePlleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR4naTuE1GUQtivU9De6FpT2NHsbGk_0LwAOXLk5-W2JV2n2lHhWvjUNajbpIA_aem_clrR-WVlyzd6FdkDSWE66w

DG Doing more link

https://dgdoingmore.co.uk/?fbclid=IwY2xjawKqeSZleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR7N-0XxhsVKZHlnCugRixpPoshurtzmxu0RhiK29tR8GydMqrMV8teM2uRFtw_aem_NkTx_nVUCbwgiyh9rDDO3w

Pain Association website

https://painassociation.co.uk/what-we-deliver?fbclid=IwY2xjawKqeVVleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR4c0R_DygupeD1puHQd0s8F58IgWHHSD2hXEtxsL2ysuXD6wiFM5UtSQFfNxA_aem_yTczoAa0pDfUX1B26TALMQ

Recent booklet created by The ME Association

https://meassociation.org.uk/wp-content/uploads/2025/05/MECFS-What-you-need-to-know-April-2025.pdf?fbclid=IwY2xjawKqeYVleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR6RNGY_YcfVH0tOu3Mqt1yDOH4CiE2ZVF69AFkqmV7V6hz46z4AiZN0vnu-5w_aem_01_G8jwXHzfU_UV8xUhR1A

The Royal College General Practitioners Scotland is recruiting new members to the RCGP Scottish Patient Forum.

https://jobs.rcgp.org.uk/job-details/24676/rcgp-scottish-forum-new-members-required/

NHS Scotland adopts NICE NG206 in place of Scottish Good Practice Statement

https://meassociation.org.uk/2025/05/nhs-scotland-adopts-nice-ng206-in-place-of-scottish-good-practice-statement/?utm_campaign=Newsletter&utm_content=NHS+Scotland+adopts+NICE+NG206+in+place+of+Scottish+Good+Practice+Statement&utm_medium=email&utm_source=getresponse&fbclid=IwY2xjawKqe9xleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR5ZlQwXrSBivE-sQNsqIZwoVWNEDuhRQedaQngZhCnihl_Dv7oIhDRw3HMYUA_aem_8bINSOZW276pJFfrzUNdYA

FMA UK Newsletter

https://preview.mailerlite.com/l0m8e5c6d1/2756756682951367213/o4u4/?fbclid=IwY2xjawKqfBVleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR4Ax1SwK1w-4UykkytFfKdrI6VeG9ydOO-bB_lHcQ_cCXyOdHnPe_37QizKcQ_aem_6p1ujk2ciK7XJWx6fGhGAg

Our fibromyalgia research highlights

https://www.versusarthritis.org/news/2024/may/our-fibromyalgia-research-highlights/?fbclid=IwY2xjawKqfEBleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR4frviZpwROH9AXVJhKqGKXDzCO5-j_CK-dU1rVfH_3YXbouzjytyxU-m-a1w_aem_pvnJK_7tcYSkVDYB6TrasA

MEpedia

https://me-pedia.org/wiki/Pain?fbclid=IwY2xjawKqfHFleHRuA2FlbQIxMQBicmlkETBLazVGckdjZGpwMGJQNmFGAR4jS0jtfXr2QvvigC903M3k-23fQYQfpAuxKshDf-q26Cecbckt4M8ax0ycSw_aem_VgMB9eP6HSepbxGJSMhvow