For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during June:

 

Record 2 million people in UK estimated to have long Covid

https://shared-news.upday.com/?streamType=breaking&edition=en&teaserId=c9afabe2-b3ae-4a89-b381-510abc378e80&articleUrl=https://news.upday.com/uk/record-two-million-britons-have-long-covid/?utm_source%3Dupday%26utm_medium%3Dreferral

 

Kirsty Young health: Star ‘floored’ by incurable condition – symptoms of fibromyalgia

https://www.express.co.uk/life-style/health/1618359/kirsty-young-health-fibromyalgia-rheumatoid-arthritis-symptoms-treatment?fbclid=IwAR39Wd4cYHJbCrUaVN5vwLbULRLBGQuFazdSSQ285ykBFZhI5u8s52moNlQ

 

FDA warns Gabapentin, Pregabalin may cause serious breathing problems

https://www.fibromyalgiaresources.com/fda-breathing-problems-gabapentin/?fbclid=IwAR22q4Y0qNe2m-dQgz20hVG91D0aaRm5QrMkfmEd0uoiVeHe-juGblZ_DiA

 

Britons suffering from long Covid ‘face postcode lottery of care,’ top nurses say

https://shared-news.upday.com/?streamType=ntk&edition=en&teaserId=b67b6973-77e1-47ac-a6f2-f0a5c3c801a9&articleUrl=https://amp-theguardian-com.cdn.ampproject.org/c/s/amp.theguardian.com/society/2022/jun/07/care-for-2m-britons-with-long-covid-woefully-inadequate-say-top-nurses?utm_source%3Dupday%26utm_medium%3Dreferral

 

Home – Leah Rachel Caplan

https://www.leahrachelcaplan.com/?fbclid=IwAR1ulIsKhkMkrvgDHUFTIzX-X0GmjnkjzSyl3GRtpl17fYLI7UWcMG8HJlU

 

Website Survey: How accessible and effective has the NHS been since the start of the pandemic?

https://meassociation.org.uk/2022/06/website-survey-how-accessible-and-effective-has-the-nhs-been-since-the-start-of-the-pandemic/

 

NICE outlines steps needed to put ME/CFS guideline into practice

https://www.nice.org.uk/news/article/nice-outlines-steps-needed-to-put-me-cfs-guideline-into-practice?fbclid=IwAR0nIm0l81f8UWC50fXbEAyGDtOebT-ZWvBAUo-4LFmRQ3smyKzOh3-aoaM

 

STV News: Scots with neurological conditions ‘struggling to access appointments’

https://meassociation.org.uk/2022/06/stv-news-scots-with-neurological-conditions-struggling-to-access-appointments/

 

Less than 20 questions on disability asked at PMQs since December 2020, research shows

https://www.disabilitynewsservice.com/less-than-20-questions-on-disability-asked-at-pmqs-since-december-2020-research-shows/?fbclid=IwAR13gRkNyXHtPm9m634Gg50t7S_-YDpl7kf_Uyo5bbZJJNo-NutCoMUtJ3E

 

With Chronic Illness, I Will Always Pay Tomorrow for What I Do Today

https://themighty.com/2017/04/having-limited-energy-with-chronic-pain-illness/?utm_term=Autofeed&utm_medium=ChronicIllness_Page&utm_source=Facebook&fbclid=IwAR2K-Z8lTMcBEKyluxR-cZSvdMNphDUGk131ck3qsloMufGyn4kXuWWmvm0#Echobox=1655020779

 

Statement on UK DHSC Announcements and the APPG Rethinking ME Report

https://doctorswith.me/statement-on-uk-dhsc-announcements-and-the-appg-rethinking-me-report/?fbclid=IwAR2K-Z8lTMcBEKyluxR-cZSvdMNphDUGk131ck3qsloMufGyn4kXuWWmvm0

 

EBV Is The Possible Cause Of Fibromyalgia, Research

https://www.fibromyalgiaresources.com/epstein-barr-virus/?fbclid=IwAR1Xlb9vEeafiesHARKKGn7RhbyD79HAzM0k7MVgwXInsYyUj-UcsqqFBiE

 

Research report: Accessing social support for Long Covid

https://www.alliance-scotland.org.uk/blog/news/research-report-accessing-social-support-for-long-covid/?fbclid=IwAR1ulIsKhkMkrvgDHUFTIzX-X0GmjnkjzSyl3GRtpl17fYLI7UWcMG8HJlU#expanded

 

Government’s commitment to ME/CFS starts to take shape

https://meassociation.org.uk/2022/06/governments-commitment-to-me-cfs-starts-to-take-shape/?fbclid=IwAR3a_7pDkSTTHPBW2BgBv1o-OB_sRwlVCCs2uln6Y9V_y6GF7y3t7J6sJNg

 

NEW Free booklet: Long Covid and ME/CFS – Are they the same?

https://meassociation.org.uk/2022/05/new-free-booklet-long-covid-and-me-cfs-are-they-the-same/?fbclid=IwAR2_W3d30Q2BrwnHDkh-EYGI5gzQQ9uu4j5qQN2CdMTwWvdYPQY0Gsk2lKk

 

What is the COVID-19 Rehabilitation Programme?

https://www.nuffieldhealth.com/about-us/our-impact/healthy-life/covid-19-rehabilitation-programme?fbclid=IwAR1Xlb9vEeafiesHARKKGn7RhbyD79HAzM0k7MVgwXInsYyUj-UcsqqFBiE

 

A Unified Mechanism for Functional Neurological Symptoms

https://gtr.ukri.org/projects?ref=MR%2FM02363X%2F1&fbclid=IwAR0M5Ioyu_1uKlS2sCDmR9VV8Du00LFvdwayn_vjXTzPmIvomFejKnZRaog

 

What’s the Difference Between Chronic Fatigue Syndrome and Fibromyalgia?

https://www.verywellhealth.com/chronic-fatigue-syndrome-vs-fibromyalgia-5213420

 

With thanks to those of you who support us when shopping through AmazonSmile ……..’If you shop Amazon Prime Day deals on 12 & 13 July, Amazon will double donations: Simply shop with AmazonSmile ON in the Amazon Shopping app or at smile.amazon.co.uk/ch/SC030641, and AmazonSmile donates to Dumfries & Galloway ME and Fibromyalgia Network.’

 

Polypharmacy patient group – call for participants

https://www.alliance-scotland.org.uk/blog/news/polypharmacy-patient-group-call-for-participants/?fbclid=IwAR1Tr2D1pMl5z6CA-7kvBs75TuG0db7INBAkEYLLC9U1yT_4wHh8ts3Bfx0

 

BBC Look North (North East and Cumbria) segment on ME/CFS

https://www.youtube.com/watch?fbclid=IwAR2BMm4uIweOBScY6s3AfGgDtMz5SUXeF75thxsNh43SdRdyafZJ3OXEMus&v=mBK2AjDIb_4&feature=youtu.be