April 2018 Facebook Blog

The following is a summary of relevant article/research links provided in April by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Hope for an ME/CFS Autoimmune Subset: A German Researcher Steps Forward ‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’. Daughter died aged 21 after illness some experts don’t believe is real left her bed-bound and wasting away Music 4 M.E Possible causes of medically unexplained symptoms Trinity College: New research network will bolster our understanding of Chronic Fatigue Syndrome | 31 March 2018 Progress in

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March 2018 Facebook Blog

The following is a summary of relevant article/research links provided in March by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs BBC ‘Why do we know so little about ME?’. The Scottish Government is developing an Action Plan for Neurological Conditions.  The Alliance Neurological Programme and Neurological Alliance of Scotland created a survey to obtain patient and carers experiences. The survey closed on 29th March. ME / CFS patient Post exertional malaise avoidance toolkit. Read about Lizzie Mooney who is 12 years old who has been sick for the past three years with ME. Trial

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