The following is a summary of relevant article/research links provided in March by Facebook members. Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open.
Articles / Blogs
- BBC ‘Why do we know so little about ME?’.
- The Scottish Government is developing an Action Plan for Neurological Conditions. The Alliance Neurological Programme and Neurological Alliance of Scotland created a survey to obtain patient and carers experiences. The survey closed on 29th March.
- ME / CFS patient Post exertional malaise avoidance toolkit.
- Read about Lizzie Mooney who is 12 years old who has been sick for the past three years with ME.
- Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative.
- Chronic Fatigue Syndrome: Scientific Discoveries and Future Targeted Treatments YouTube.
- Trial By Error: News About My Plans.
- The enemy within: Gut bacteria drive autoimmune disease.
- Liverpool Echo: Disease like ‘living death’ means mum can only see toddler son a few minutes a day.
- ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis.
- 55 REASONS why NICE must recommend a home visiting, biomedical service, for people with Severe Myalgic Encephalomyelitis.
- When I eventually wake up, Blog.
- Stem cell transplant ‘game changer’ for MS patients.
- Frontiers Press Release: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones.
- Chronic Fatigue Syndrome Might Have a Crucial Hormonal Link.
- That “Game Changer” MS Treatment Going Viral Really Might Be Too Good to Be True.
- Chronic fatigue trial results ‘not robust’, new study says.
- Scottish Government report on the Specialist Nursing and Care Fund across Scotland.
- Thinking the Future for ME.
- The Shift: Top Science Journal Asserts Shift in Attitude Towards ME/CFS Has Occurred.
Members posts / local support discussions
- Medications
- PIP and ESA
- B12 benefits
- Yoga in bed
- The Centre of Integrative Care at Gartnaval, Glasgow
- Rheumatology v Neurology and ‘living life to the full’ website.
There will be a public showing of the critically acclaimed Unrest film in the Robert Burns Film Theatre on Tuesday 15th of May at 7pm. There will be refreshments and a discussion afterwards, hosted by DGMEFM Network, with Dr Shepherd joining by Skype for the discussion.
Take care and gentle hugs to you all Kim J (Web Support), E-mail: kim@dgmefm.org.uk 😊