Blog – DGMEFM Network

For the November meeting, Nutritionist, Karen Scobie will be in attendance to give advice on diet and nutrition while allowing those attending the opportunity to share their food experiences. Please come along to meet Karen and share what has worked and any ideas you may have to make things better for your own care and that of others. Tea and coffee will be available, as always. Please feel free to bring any other drink or a biscuit or snack. Come for as much or as little of the meeting as you can cope with. The meeting will be held in the Midsteeple in the centre of Dumfries High Street. Entry

September 2017 Facebook Blog

01/10/2017

Kim

Blog, Resources

The 5th October meeting will start with our Annual General Meeting (AGM). We need a minimum of 10 members to attend for this please. Articles / Blogs Metabolic switch may bring on chronic fatigue syndrome, article . ‘The team is now conducting a large trial in Norway of the cancer drug rituximab, which destroys the cells that make antibodies, in people with CFS. Results are expected next year.’ Lady Gaga was taken to hospital in ‘severe pain’ cancelling her Rock In Rio appearance. Shortly afterwards she confirmed she has Fibromyalgia, forcing her to reschedule her European leg of her tour, BBC article. For those of you with Netflix, her documentary, Gaga:

Members Feedback Questionnaire 2017

20/09/201723/09/2017

Kim

Feedback Questionnaire

We wish to thank all DGMEFM Network members who completed the members feedback questionnaire. Feedback Aims: To be able to target our energy, time and resources on the things that matter most to members; Make informed funding applications; and Speak confidently on members behalf with Health and other organisations about the effect of ME/CFS and FM. Following the cut off date Friday 25th August 2017, we had received 43 completed returns (23 electronically and 20 on paper). As a thank you for taking the time to complete the feedback, everyone who completed a return was entered into a prize draw. Prize Draw Results: 1st Prize – £50 Brian Conchie 2nd

DGMEFM Network AGM

15/09/201715/09/2017

Kim

Meetings

The AGM will take place on 5th October 2017 in the meeting room at Midsteeple Box Office, Dumfries from 1pm to 2pm. Entry is through the blue Box Office door. We use the first floor meeting room and there’s full disabled access using the lift (press and hold the button). Agenda: Welcome Chairman’s Report; including approval of Trustee Annual Report Treasurer’s Report; including approval of Audited Annual Accounts and election of Independent Examiner Dissolution & Election of Committee Election of Committee Members Committee Members (minimum of 5, maximum of 15) should be able to communicate either through Facebook or e-mail and be available to attend Committee meetings at least three

August 2017 Facebook Blog

02/09/2017

Kim

Blog

As we enter September there is a definite nip in the air. If like me you find your body thermostat is wonky, the start of the cold weather will hit you hard, so try and remember to layer up. Thank you to all the members who completed our survey which will help us focus our own depleted energies on the things that you have shared matter to you. We really do appreciate the time you put in completing this survey as we understand how difficult completing the simplest of tasks can be. The 7th September meeting has the theme of Medications and Supplements. Come along and share what works for

Members Feedback Questionnaire

13/08/2017

Kim

Resources

Thank you to all the members who have completed their return online or on paper. Please remember to complete and return by Friday 25th August 2017. Your feedback will help us target our energy, time and resources on the things that matter most to you. Even if you are happy with the current level of support you receive, we would really appreciate hearing from you. If you have misplaced your questionnaire, please email kim@dgmefm.org.uk or admin@dgmefm.org.uk so we can provide the link to complete the online questionnaire. The questionnaire is for members only, although if you have not joined already you can request this at the same time by providing

July 2017 Facebook Blog

31/07/201731/07/2017

Kim

Blog

Welcome to August and for registered members, the receipt of our feedback questionnaire which we would be very grateful for members to complete. Although this has been provided in paper format, completing this online would really help us out as your record would immediately be saved and stored in a secure location. There were lots of interactions this month with members sharing advice, offering suggestions or empathising where Facebook members were struggling. Articles / Blogs The article ‘Even “Minor” Infections Can Cause Chronic Fatigue Syndrome (ME/CFS)’ was shared. The article ‘Biological underpinnings of chronic fatigue syndrome begin to emerge’ was shared. The ME Association article ‘CDC removes CBT and GET

June 2017 Facebook Blog

01/07/2017

Kim

Blog, Resources

Welcome to July and the start of School holidays. If you are interested in helping with the creation of the monthly Facebook blog, please email Kim (Secretary) at: kim@dgmefm.org.uk. 😊 Articles / Blogs One of the biggest myths about chronic fatigue syndrome just got destroyed in this article which suggests a faulty cell receptor. Could there be a biomarker for ME/CFS?, check out this article. The article ‘Brit scientist could be about to CURE multiple sclerosis and provide hope for millions’ was shared as potentially could, in time, cure other conditions. The article explains how they are not using any drugs but instead simply switching on the body’s own systems of

6th July 2017 monthly meeting with Action For ME

28/06/201728/06/2017

Kim

ME, Meetings

For the July meeting, Theresa and April from Action For ME will be in attendance. As well as explaining what they do, they are keen to listen about health care experiences (NHS or private) and improvement suggestions from members. We hope this could be the start of a fuller consultation, with ideas to be further developed in future sessions. Although it is ME/CFS focussed, it will be applicable to fibromyalgia and other fatiguing and difficult to diagnose conditions too. Please come along to meet Theresa and April and share what has worked and any ideas you may have to make things better for your own care and that of others.

May 2017 Facebook Blog

31/05/2017

Kim

Blog, Resources

A big thank you to the Network members who brought awareness to shoppers visiting Tesco Extra, Cuckoo Bridge, Dumfries on Awareness Day, 12th May 2017. Check out one of the pictures on our blog. If you are interested in helping with the creation of the monthly Facebook blog, please email Kim (Secretary) at: kim@dgmefm.org.uk Articles / Blogs How to tell if it’s Fibromyalgia or Multiple Sclerosis is available at link. Stereotyping still prevents ME from being taken seriously is available at link. Kay Adams revisited ME on her show on Awareness day, see link. Reduced cardiac volumes in chronic fatigue syndrome associate with plasma volume but not length of disease: a cohort

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