DGMEFM Network

The following is a summary of relevant article/research links provided in May by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome ME Awareness Week: BBC Newsbeat Documentary Missing the fizz: my long battle to understand the mysteries of ME This is why exercise can’t cure illness ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP ‘Urgent change’ needed to improve lives of ME sufferers On Saturday ‘millions’ of ‘missing’ people will reappear for the day ME

The following is a summary of relevant article/research links provided in April by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Hope for an ME/CFS Autoimmune Subset: A German Researcher Steps Forward ‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’. Daughter died aged 21 after illness some experts don’t believe is real left her bed-bound and wasting away Music 4 M.E Possible causes of medically unexplained symptoms Trinity College: New research network will bolster our understanding of Chronic Fatigue Syndrome | 31 March 2018 Progress in

The following is a summary of relevant article/research links provided in March by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs BBC ‘Why do we know so little about ME?’. The Scottish Government is developing an Action Plan for Neurological Conditions.  The Alliance Neurological Programme and Neurological Alliance of Scotland created a survey to obtain patient and carers experiences. The survey closed on 29th March. ME / CFS patient Post exertional malaise avoidance toolkit. Read about Lizzie Mooney who is 12 years old who has been sick for the past three years with ME. Trial

The following is a summary of relevant article/research links provided in February by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Personal Independence payments: All 1.6 million claims to be reviewed. Oscar-nominated film director in ME plea to MSPs. BBC Radio Scotland: ME – The Invisible Disease. Brainwaves on ME. A story of confusion, misunderstanding, misdirection, misdiagnosis and misery. Lady Gaga halts tour for a second time due to ‘severe pain’. Medically Unexplained Symptoms – A Practical Guide. Trial By Error: Letter to British Journal of Sports Medicine from CPET Experts. Rethinking the treatment

I am not sure if you will agree but for me December and January are always the most physically and mentally challenging months to manage my chronic illness due to the additional festive pressures, increase of bugs/viruses to catch and lack of daylight.  To ensure you don’t miss out on all the great links posted, I have therefore combined the two months. The following is a summary of relevant article/research links provided over these two months, provided by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Antibiotics Might Be Stopping Immune Cells From Working

The following is a summary of relevant article/research links provided this month by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs How Ketogenic Diets Curb Inflammation in the Brain. New Scientist: Blood cells in chronic fatigue syndrome are drained of energy. Metabolomics Study Points Finger at Energy Production in Fibromyalgia. For those looking for support to help them stay in work: link. Fibromyalgia and Gastroesophageal Reflux Disease Are Linked. Fibromyalgia Tied to Hysterectomy, Gynecologic Disease. Trial By Error: The Surprising New BMJ Best Practice Guide. Massage technique ‘speeds up’ diagnosis of chronic fatigue illnesses.

For those of you looking for advice on diet and nutrition, you may wish to attend the 2nd November Monthly Meeting Our AGM on 5th October was not well attended.  Thank you to the 4 members that Craig (Chairperson) contacted by telephone on the day to agree to their proxy vote being used to allow the AGM to meet quorum of 10 members. The following is a summary of relevant article/research links provided this month by Facebook members. Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs The Future Learn course, ‘The role of personal assistants in