Job Advert
Volunteer Co-ordinator
Hours: 14 hours per week
Length of contract: Fixed term contract until 31st October 2024. Possible extension dependent on funding.
Pay scale: £25,352.60 pro rata
Thanks to funding from the National Lottery Community Fund, we are delighted to be recruiting a volunteer co-ordinator.
Full details …
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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during September:
“What is it like living with fibromyalgia? Difficult, unpredictable and painful.”
Experts launch world’s largest genetic study of ME
Twitter – Maya Henning – #LongCovid …
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For those of you who haven’t yet come across Care Opinion, it’s a handy resource to allow you to provide feedback on health and care services.
Your feedback is sent directly to the relevant head of service and you should receive a direct response.
For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during August:
Update: The ‘Recovery College’ withdraws outdated information on ME/CFS
BBC Radio Scotland: MS GB FINALIST – We’ll speak to Bishopton mum Sarah Victoria Bayley who’s in …
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So here is the saga of the disability walker, in full detail.
I waited in for the domiciliary visit which was supposed to be 3pm.
By 3.30pm I decided to ring the single access number again to ask how late the visit was going to be.
Well, my previous telephone …
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If you, or someone you know, may be interested in becoming a trustee, whether existing or new member, friend, partner, or family member, please contact: Eileen Longworth Tel: 07557 536110, or email admin@dgmefm.org.uk for an informal chat.
The post is voluntary but travel expenses etc are covered by the charity. …
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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during July:
BBC Look North (North East and Cumbria) segment on ME/CFS
https://www.youtube.com/watch?v=mBK2AjDIb_4
MEA requests meeting with North Cumbria NHS Trust to discuss their ME/CFS referral service
Myalgic …
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Well, I’ve been missing in action for a couple of months, and I haven’t even got a note from my mother! 😃 To be honest I’ve been burning the candle at both ends, 🤣🤣 living life, and to heck with counting spoons. 😟
In June I had a holiday booked …
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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during May:
Medical Matters – Health questions answered by our experts:
A new template letter has been produced to help people with ME/CFS to be considered …
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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during June:
Record 2 million people in UK estimated to have long Covid
Kirsty Young health: Star ‘floored’ by incurable condition – symptoms of fibromyalgia
https://www.express.co.uk/life-style/health/1618359/kirsty-young-health-fibromyalgia-rheumatoid-arthritis-symptoms-treatment?fbclid=IwAR39Wd4cYHJbCrUaVN5vwLbULRLBGQuFazdSSQ285ykBFZhI5u8s52moNlQ …
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