The following is a summary of relevant article/research links provided in August by Facebook members. Please click on the article name to open and read it.
Articles / Blogs
- Denmark: Analysis and comments to Karina Hansen’s journal from when she was sectioned at Hammel Neurocenter.
- CBD oil: Have the benefits been overstated?
- TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’.
- Is the Brain Causing the Small Fiber Neuropathy in Fibromyalgia (and ME/CFS?).
- How Toning the Vagus Nerve Heals Pain.
- Can mHealth Tools, Smart Clothing Help in Chronic Fatigue Research?
- Cortene to Move Forward on New Drug for Chronic Fatigue Syndrome (ME/CFS).
- Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome.
- Open trial of vitamin B12 nasal drops in adults with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: comparison of responders and non-responders.
Members posts / local support discussions
- Lots of sleepless nights for members during August and discussions/suggestions to help. PJs a wardrobe staple. Bulk purchases of Epsom salts 😉
- Benefits and the support of Citizens Advice Centre.
- Colin Smyth MSP got a very good understanding from you of the problems we face with benefits, support and health care when he attended the Networks monthly meeting on 3rd. He has attended events in the Scottish parliament for ME before now and will be well informed of the local situation for the next one. He’s happy to hear from our members and his constituents with their problems.
- Pain medication alternatives being tried by members.
- Pacing – easier said than done, resulting in crash/flare up!
- Listening books website.
- Weather changes and the effect on members.
- Managing persistent pain workshop at Wellness Centre, 9 George St Meuse, Dumfries. Facebook Booking essential (£25 or £20 concession): https://www.facebook.com/events/2475388362518881/
- ‘Not to brag or anything, but I can forget what I’m doing while I’m doing it’.
- ‘If it requires PANTS or a BRA, it ain’t happening today’.
- ‘Friend: How much sleep are you getting? Me: Sometimes when I sneeze my eyes close for a second’.
- ‘I can’t remember when I WASN’T tired’.
Take care and gentle hugs to you all Kim J (Web Support), E-mail: firstname.lastname@example.org😊.