Facebook Group activity in November

For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during November:

Chronic Fatigue Syndrome Research: Research in our lab has led us to the conclusion that CFS is not a problem with energy “deficiency”. It is a problem with cellular energy “distribution” and reserve capacity regulated by changes in mitochondrial function.

https://naviauxlab.ucsd.edu/science-item/chronic-fatigue-syndrome-research/?fbclid=IwAR2dydwW6YkQvHEhEtzPR5UscY6zgAU9Ry1EQk_fnwUgbX8bH-u-wf9yNFU

Dr Shepherd’s rapid response to BMJ Article

https://meassociation.org.uk/2021/11/dr-shepherds-rapid-response-to-bmj-article/

NICE 2021: A Triumph of Science over Discrimination

https://doctorswith.me/nice-2021-a-triumph-of-science-over-discrimination/?fbclid=IwAR3Tg9S98GCRBb_Qxrgt81WH4BjdK8mMHlL58ZA2-p-TLTWlRtZrOPXNrgo

UK launches trial of drug to tackle fatigue in long Covid patients

https://www.theguardian.com/society/2021/nov/03/uk-launches-drug-trial-tackle-fatigue-long-covid-patients

MPs want to hear your experiences of applying for PIP and ESA

https://committees.parliament.uk/committee/164/work-and-pensions-committee/news/158609/mps-want-to-hear-your-experiences-of-applying-for-pip-and-esa/?fbclid=IwAR3f0EcJJvakYQNFWSohPhkc6d5_0GeGP_EgY6mrkiAc3dn1oX9AMBLAbwU#

Could long covid unlock clues to chronic fatigue and other poorly understood conditions?

https://www.washingtonpost.com/health/2021/11/07/long-covid-fatigue-research/?fbclid=IwAR3FWdzgJcLL2L7oF5cqAeOrurBL_ZGgvG5SShdcs6qF605vnGE5hQ0EAzs

Twitter: Dr Mark Guthridge: An excellent Twitter thread from a doctor explaining why exercise, normally good for those who are I’ll, can be so bad for us

https://twitter.com/dr_m_guthridge/status/1278308004845109249?s=21&fbclid=IwAR31UywUiwuPxaGlWEXVaceAlhYxhaaXvwGzXtn4UdMiZ9AitujSjisaSZk

Welcome to the Disability Equipment Service: A national website dedicated to the buying and selling of new and used disability equipment.

https://disabilityequipmentservice.co.uk/

Dumfries & Galloway Citizens Advice Project, Support4Life

https://www.dgwgo.com/community-focus/dumfries-galloway-citizens-advice-project-support4life/?fbclid=IwAR2h2EX1JpAq1HNbgyX7rs8VHEQf0BDn5TVc_6jqJPlKeyxRJvwNhFeS_tc

Study Shows That Fibromyalgia is a Post-infectious Disease Too

https://www.healthrising.org/blog/2021/10/27/fibromyalgia-post-infectious-disease/?fbclid=IwAR3aJR1qzV7wxYHbMc1NKdENxOVarCHpzzp7gGfRKtk_em0fkv2VrM8YlTc

Descriptions Project – Sharing M.E. Experiences

https://www.actionforme.org.uk/news/sharing-m.e.-experiences/?fbclid=IwAR2sRjS6X8moEqm3bzcz323EmcROhtyDBo8mV-5u2Vp_Q7KKO27QFMCVwuQ

Update: DecodeME to launch in January 2022

https://www.decodeme.org.uk/update-decodeme-to-launch-in-january-2022/?fbclid=IwAR343EZksYHPh5SaMmyYdHQACd-DpCNWUFQw5kMrXr6U5RofLc9FvZd5shM

Important update & first look at ‘spit kit’

https://www.decodeme.org.uk/important-update-first-look-at-spit-kit/?fbclid=IwAR2sRjS6X8moEqm3bzcz323EmcROhtyDBo8mV-5u2Vp_Q7KKO27QFMCVwuQ

Major Study Links Gut Bacteria to Fatigue in Chronic Fatigue Syndrome (ME/CFS)

https://www.healthrising.org/blog/2021/11/10/bacteria-fatigue-chronic-fatigue-syndrome/?s=09&fbclid=IwAR2rp9Viaa_lQMZV91bPq2p17XzdO9NgWGDvMDj6sDy5_m1bbiwis_CnhEE

We demand the creation of a new mechanism to report non-pharmaceutical ‘treatment’ harms.

https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-to-report-non-pharmaceutical-treatment-harms?utm_content=cl_sharecopy_31257696_en-GB%3A4&recruited_by_id=9d05fd00-445f-11ec-b486-b1067e949962&utm_source=share_petition&utm_medium=copylink&utm_campaign=psf_combo_share_initial

New Amy Proal Interview with Doctor John Chia

https://docs.google.com/document/d/1jroQ3otaUZ4MuwPuKY3ELIaSmXdsPa0UoSsNmACaQoM/edit?fbclid=IwAR0wSAC4vcK6bGd2SJ-JTXT0kOY4UUIDIS3t5gNOXYFK3gbv-lQtmXaD9zM#heading=h.csy4n5lnyy8b

The long and short of it – ‘Long-Covid’ is not unique in viral illnesses

https://www.irishtimes.com/news/science/the-long-and-short-of-it-long-covid-is-not-unique-in-viral-illnesses-1.4731144?fbclid=IwAR0A6dnptQq82SddqqYUJOlDktJ0gBpSLqLck9u3djr6v7B9grg4pi-O0QY

BBC research: Chronic Pain in a pandemic

https://www.smartsurvey.co.uk/s/N4ABI5/?fbclid=IwAR3Tg9S98GCRBb_Qxrgt81WH4BjdK8mMHlL58ZA2-p-TLTWlRtZrOPXNrgo

Something Akin to Heart Failure May Be Occurring in the Muscles of Long-COVID Patients (and People with ME/CFS)

https://www.healthrising.org/blog/2021/11/19/heart-failure-muscles-long-covid-chronic-fatigue/?fbclid=IwAR3u2Ym3PNg8iNjWND7W6SjTX1av_0yS8mZhgwowXZ5gcRL2A8k7nzBY6PY

Set up a national harms reporting scheme for non-pharmacological treatments

https://petition.parliament.uk/petitions/601237?fbclid=IwAR0PhGinub7fudxmGDHUuG3OFJmmMXD7xcKqcPhtqfwoerUzEGr5d6hwdK0

ME Research: Breakthrough magazine

https://www.meresearch.org.uk/research/breakthrough-magazine/?fbclid=IwAR0wSAC4vcK6bGd2SJ-JTXT0kOY4UUIDIS3t5gNOXYFK3gbv-lQtmXaD9zM

An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-021-03143-3?s=09&fbclid=IwAR0gs8d9jTTel5P_uJWST1c2X7IQ_svWMOf_ubiMSFsIDuiQ4ZUEIYBR9W4

Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM)

https://www.preprints.org/manuscript/202111.0420/v1?fbclid=IwAR3u2Ym3PNg8iNjWND7W6SjTX1av_0yS8mZhgwowXZ5gcRL2A8k7nzBY6PY

Even Health-Care Workers With Long COVID Are Being Dismissed

https://amp-theatlantic-com.cdn.ampproject.org/c/s/amp.theatlantic.com/amp/article/620801/?fbclid=IwAR1oGh8lse9B9qw0IJdj1SkeboeHfZF34sKyUFwqzW1l8WvzmV1bUhFrPgU

The seven types of rest: I spent a week trying them all. Could they help end my exhaustion?

https://www.theguardian.com/lifeandstyle/2021/nov/25/the-seven-types-of-rest-i-spent-a-week-trying-them-all-could-they-help-end-my-exhaustion?utm_source=dlvr.it&utm_medium=facebook&fbclid=IwAR0-PTv_nRaKPg_izyrHZ8gsdzOirReVPXn5V18lvJP3dft-6VqM-cXcOu4

Psychogenic ME/CFS: Turning the Nostalgia Up to Eleven

https://thesciencebit.net/2021/11/24/psychogenic-me-cfs-turning-the-nostalgia-up-to-eleven/?fbclid=IwAR3wG2f8mFnFfLKbAW07c5E06kohC-CfOR_MMDxfKqFkFHqPurwqNe14BDc

Threadreader: Shaun Peter Qureshi

https://threadreaderapp.com/thread/1463501532247302145.html?fbclid=IwAR0xwcH1vg77gC8TatF9GQ6SrQ8YRcPImu8Vbcq9v5hXbX7vp1EWe67Jm4g

Pain Association: Dumfries & Galloway Self-Management Course

https://painassociation.co.uk/dumfries-stranr?fbclid=IwAR2h2EX1JpAq1HNbgyX7rs8VHEQf0BDn5TVc_6jqJPlKeyxRJvwNhFeS_tc

Lisburn father and son share their experiences of long Covid and ME and similarities between the conditions