For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during November:
Chronic Fatigue Syndrome Research: Research in our lab has led us to the conclusion that CFS is not a problem with energy “deficiency”. It is a problem with cellular energy “distribution” and reserve capacity regulated by changes in mitochondrial function.
Dr Shepherd’s rapid response to BMJ Article
NICE 2021: A Triumph of Science over Discrimination
UK launches trial of drug to tackle fatigue in long Covid patients
MPs want to hear your experiences of applying for PIP and ESA
Could long covid unlock clues to chronic fatigue and other poorly understood conditions?
Twitter: Dr Mark Guthridge: An excellent Twitter thread from a doctor explaining why exercise, normally good for those who are I’ll, can be so bad for us
Welcome to the Disability Equipment Service: A national website dedicated to the buying and selling of new and used disability equipment.
Dumfries & Galloway Citizens Advice Project, Support4Life
Study Shows That Fibromyalgia is a Post-infectious Disease Too
Descriptions Project – Sharing M.E. Experiences
Update: DecodeME to launch in January 2022
Important update & first look at ‘spit kit’
Major Study Links Gut Bacteria to Fatigue in Chronic Fatigue Syndrome (ME/CFS)
We demand the creation of a new mechanism to report non-pharmaceutical ‘treatment’ harms.
New Amy Proal Interview with Doctor John Chia
The long and short of it – ‘Long-Covid’ is not unique in viral illnesses
BBC research: Chronic Pain in a pandemic
Something Akin to Heart Failure May Be Occurring in the Muscles of Long-COVID Patients (and People with ME/CFS)
Set up a national harms reporting scheme for non-pharmacological treatments
ME Research: Breakthrough magazine
An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM)
Even Health-Care Workers With Long COVID Are Being Dismissed
The seven types of rest: I spent a week trying them all. Could they help end my exhaustion?
Psychogenic ME/CFS: Turning the Nostalgia Up to Eleven
Threadreader: Shaun Peter Qureshi
Pain Association: Dumfries & Galloway Self-Management Course
Lisburn father and son share their experiences of long Covid and ME and similarities between the conditions
The Neurological Alliance is running its biannual National Neurological Patient Experience Survey