For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during July:

 

BBC Look North (North East and Cumbria) segment on ME/CFS

https://www.youtube.com/watch?v=mBK2AjDIb_4

 

MEA requests meeting with North Cumbria NHS Trust to discuss their ME/CFS referral service

https://meassociation.org.uk/2022/07/mea-requests-meeting-with-north-cumbria-nhs-trust-to-discuss-their-me-cfs-referral-service/

 

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome NICE guideline: stakeholder review

https://www.gov.scot/publications/report-scottish-stakeholder-review-myalgic-encephalomyelitis-chronic-fatigue-syndrome-nice-guideline/

 

Understanding Persistent Pain for those who don’t have it

https://www.cuh.nhs.uk/patient-information/understanding-persistent-pain-for-those-who-dont-have-it/?fbclid=IwAR2Lv5Sd5-d8Z23_Zg6pbNgN9d7zZNw2AhEWZVVZ2vt3TEylQJNxUYNVoss

 

Energy suppliers commit to offering more help for customers this winter after round table with consumer groups and charities

https://www.moneysavingexpert.com/news/2022/07/energy-suppliers-commit-to-offer-more-help-for-consumers-this-wi/?utm_source=facebook&utm_medium=social&utm_campaign=news&source=FBORG-NEWS&utm_content=1657278041&fbclid=IwAR2hMAZmUWjM26ocGY4jyGpQXkSh0TOSMDzv0TXaXrODx4vtvxgByFFCWYw

 

Scottish Government backs NICE Guideline

https://www.actionforme.org.uk/news/scottish-government-backs-nice-guideline/?fbclid=IwAR09hNuM88wgxnfSpl_5F3mvaS3xzf_qUFS6Fko4Rzf-2xvJ-Sb6Z_D8-yc

 

How to move: exercising with fibromyalgia

https://www.theguardian.com/lifeandstyle/2022/mar/03/how-to-move-exercising-with-fibromyalgia?CMP=Share_AndroidApp_Other&fbclid=IwAR3Z34RNcM_3dVses8EMuz1djTRyHtN4oJLz9zmp5n9bQXfcA2xEju3joJY

 

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome NICE guideline: stakeholder review

https://www.gov.scot/publications/report-scottish-stakeholder-review-myalgic-encephalomyelitis-chronic-fatigue-syndrome-nice-guideline/

 

New Long Covid Lived Experience Network

https://www.alliance-scotland.org.uk/blog/news/new-long-covid-lived-experience-network/?fbclid=IwAR324Eco1hqEBowEy0eOfqnyoCHDZPVtwhNlTDGxrs4YjtCChktC8UwBr-k

 

New Amazon Smile Account – Support Dumfries & Galloway ME and Fibromyalgia Network [SCIO]

https://smile.amazon.co.uk/ch/SC051578?fbclid=IwAR2DKQBzzpwkCWp8Nkj934sq18KPBQT7hFQlrFkUYO-834AmYuIta8hs4q8

 

Information about Action for M.E.’s free specialist Independent Advocacy service

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.actionforme.org.uk%2Fuploads%2Fimages%2F2022%2F04%2FAdults-Advocacy-info-pack-April-2022.pdf%3Ffbclid%3DIwAR324Eco1hqEBowEy0eOfqnyoCHDZPVtwhNlTDGxrs4YjtCChktC8UwBr-k&h=AT0_r6ievwnSJv-oOGgqeUajyodFx_cHPt65PMdf3XxanDhLQQ2nK7eh-CmwkEXbBQvZ-dXEey0QZjOVkNpHFQ-H4WxyAsksnCxJ0cVeqLsVngZKyLvsZOGaZUNq153uwA&__tn__=H-R&c[0]=AT3vTlYIwwmG7AF43bM0inH1NO-jPreAJyuJ48UN_DXNFAJIHLCRQ4FNxOAey9753GcnB7AnCfGX3P6iLWNQX9l2w9ObD5mNtaI_6vOKKjiRGMfIabHd_4f9jaNaooqi0Qg1oZbWVEqBMhUQCDpwdjG14mbkuR6ungCo7T2syfBo1z8gzSppdLvfzkvPlcQ12m6ZZ-4xg7welnvFk58JF_ebexd8AhQRcB3hi4E7S4Y

 

Chronic Pain: Long-Term Effects on the Brain and Body Explained

https://www.pathways.health/chronic-pain-long-term-effects-on-the-brain-and-body-explained/?fbclid=IwAR1fGTfRojCU_dF2osMImoR4HnagfvogR4xHDE46PUKdNo_IEvPEJLrdxVY

 

North Cumbria Persistent Physical Symptoms (and ME/CFS) Service Update

https://meassociation.org.uk/2022/07/north-cumbria-persistent-physical-symptoms-and-me-cfs-service-update/?fbclid=IwAR0qCFOomDXw3m4u_u-B3R3vkGF2H7c9yo_Aq2y5zbqKQRarxFGiYhbj7WY

 

I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

https://www.theguardian.com/commentisfree/2022/jul/28/hope-cure-chronic-condition-identity-disability?fbclid=IwAR2DdabX2ec4GP_dX_bxNUsPOB0a4cagoHf-j7O984qLbv_VMIoeTI37hHc

 

Self-care and body image with M.E or Chronic Illness

https://thesleepybookworm.home.blog/2022/07/07/self-care-and-body-image-with-m-e-or-chronic-illness/?fbclid=IwAR1hO0OdhJFQLxmRQTA9RwEjOte3oolZVBSqclsLDpILyv4-wdhskJ0atHk

 

Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-022-03488-3?fbclid=IwAR0JkTELQpbJbxTh60IahnyDyC8Nv84Dw84qcUsaOh-okjMw4lBksxUovNI

 

Are you a young disabled person aged 16-25, and living in Scotland? You could be eligible for up to £4,000 in funding, for 1 year, from the Transition Fund!

https://ilf.scot/transition-fund/?fbclid=IwAR3B3wqrrHkWHBZqt8bOB57_R1NgAGLS8rl5ZBexCU__cGF41FvnR_VVZ0E

 

£400 energy bills discount to support households this winter

https://www.gov.uk/government/news/400-energy-bills-discount-to-support-households-this-winter?fbclid=IwAR39BaaguLK6O5LaJw5Y-Fm8cd2v-okBCNHVSD8w3Wjo8S83QEJZenq4OyQ

 

The Stove Network Are Looking To Support Your Community Led Projects

https://www.dgwgo.com/community-focus/stove-network-looking-support-community-led-projects/?mc_cid=604627b0e3&mc_eid=0f2a53e5ff&fbclid=IwAR0o3jiwbFpSXxQfgR0qdbNiRvBwEzOZthPe3ogQ3azT8YtgpK6ZhOsD9xs

 

Researchers identify 3 types of long Covid based on nature of symptoms

https://shared-news.upday.com/?streamType=ntk&edition=en&teaserId=eeac23b9-5527-478f-bab1-0fb1f558da4e&articleUrl=https://news.upday.com/uk/there-are-three-types-of-long-covid-say-researchers/?utm_source%3Dupday%26utm_medium%3Dreferral