For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during December and January:

 

Emma NextGen Premium Mattress

https://www.emma-sleep.co.uk/emma-nextgen-premium-mattress/?fbclid=IwAR0oCfVninz8z1iJfiqznN4xfDwwgUY9OWeWQ3IAgGwlXt3u4WAZEL_Z_aM

 

What to do if you think you need help with energy bills

https://www.smartenergygb.org/about-smart-meters/advice-for-those-worried-about-energy-bills?gad_source=1&gclid=CjwKCAiA1MCrBhAoEiwAC2d64SFLozBRqceDbCpARv6SUGK7_XbgS-iTTVvDErLTFnDKunxsnCDV2hoCmuIQAvD_BwE&gclsrc=aw.ds&fbclid=IwAR3C4lWFRi9N2lA0Dx4TC3SECKvwsQg1k9TqQa-E8Y-9qwsVFRSSlyeGYJw

 

Medical Matters

https://meassociation.org.uk/medical-matters/

 

Support to access benefits in Scotland

https://www.voiceability.org/support-and-help/support-to-access-benefits-in-scotland?fbclid=IwAR2HZf3dL1xS-0kcs1NdF00Gx-SrQF2QOPy8eU4htbG5y82ZMtVdsG80crg

 

Low cost broadband and phone plans – Who can get BT Home Essentials?

https://www.bt.com/exp/broadband/home-essentials/broadband/home-essentials?fbclid=IwAR0lHT2grjhMOC-QL2sMPLByNHhsx-OVSsyvWX1DCekOr-WJjOpl9XuKfF0

 

Fascia: A Hidden Piece of the Puzzle of Fibromyalgia Pain

https://healthnews.softfay.com/2023/10/26/fascia-a-hidden-piece-of-the-puzzle-of-fibromyalgia-pain/?fbclid=IwAR2HZf3dL1xS-0kcs1NdF00Gx-SrQF2QOPy8eU4htbG5y82ZMtVdsG80crg

 

Antidepressants for chronic pain lack reliable effectiveness evidence

https://www.ncl.ac.uk/press/articles/latest/2023/05/antidepressantsforchronicpain/?fbclid=IwAR3Ifp8Rh4IPDoFZ-RkYTEtacLEpz6zQ3hg3p4OuaddvBcuwtkHH2mLCh1M

 

The Nicotine Patch Long COVID, ME/CFS and Fibromyalgia

https://www.healthrising.org/blog/2023/12/07/nicotine-patch-long-covid-chronic-fatigue-fibromyalgia/?fbclid=IwAR0FgJbIAJLYUB76YWHy0ivBpm1epPe8jzdAwD1x-70gwlcgp1O8bxmLuCA

 

48-Pain Full Hours Recovery Period in Fibromyalgia & Chronic Fatigue Syndrome

https://fibrowarrior.co/48-pain-full-hours-recovery-period-in-fibromyalgia-chronic-fatigue-syndrome/?fbclid=IwAR1ThYqJcK_DMXAexbXu2MLT8kpvTYDzxEI2sOvkb9CKaHGVe1wJBPpcwfA

 

BBC News: Daughter’s death ‘could have been avoided’

https://meassociation.org.uk/2023/12/bbc-news-daughters-death-could-have-been-avoided/

 

Attribution of neuropsychiatric symptoms and prioritization of evidence in the diagnosis of neuropsychiatric lupus: mixed methods analysis of patient and clinician perspectives from the international INSPIRE study

https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false&fbclid=IwAR3n0y4RX2Y0scN01hhsHJEcZoXBkdglcvYoCQ-YrkzjKqevUUfTArwyyAY

 

Ongoing research studies that you can take part in

https://www.registerforshare.org/studies?fbclid=IwAR28fRbNYqmFPV1L5rzOLHrP8y5TXiY5-4HLmq3KWYALi1reeMM37Fgdsbo

 

Covid pandemic ‘had lasting impact’ on brain health of people aged 50 or over

https://www.theguardian.com/society/2023/nov/01/pandemic-had-lasting-impact-on-brain-health-of-people-aged-50-or-over?CMP=Share_AndroidApp_Other&fbclid=IwAR0lHT2grjhMOC-QL2sMPLByNHhsx-OVSsyvWX1DCekOr-WJjOpl9XuKfF0

 

Disrupted sleep in your 30s and 40s linked to memory and thinking issues in later life

https://www.euronews.com/health/2024/01/03/disrupted-sleep-in-your-30s-and-40s-linked-to-memory-and-thinking-issues-in-later-life?insEmail=1&insNltCmpId=339&insNltSldt=10080&insPnName=euronewsfr&isIns=1&isInsNltCmp=1

 

Role of pharmacological activity of autoantibodies in ME/CFS

https://gtr.ukri.org/projects?ref=MR%2FY003667%2F1&pn=0&fetchSize=25&selectedSortableField=date&selectedSortOrder=ASC&fbclid=IwAR2fKUAeJAVs5QK8Xdq9y3ExAsWB6yZq003EJ-CYNScTABe7a1k7mq3Dsvc

 

Long Covid patients risk serious long-term injury from running or cycling

https://inews.co.uk/news/long-covid-patients-serious-injury-running-cycling-2837180?fbclid=IwAR0z2GFm2BOw-TUFRoEpT80v69OG9GlBS3xOaRfT72t8bR5wy2HTHblerMU

 

New app can reduce debilitating impact of tinnitus, say researchers

https://www.theguardian.com/science/2024/jan/09/new-app-can-reduce-debilitating-impact-of-tinnitus-say-researchers?fbclid=IwAR3C4lWFRi9N2lA0Dx4TC3SECKvwsQg1k9TqQa-E8Y-9qwsVFRSSlyeGYJw

 

Social tariffs: Cheaper broadband and phone packages

https://www.ofcom.org.uk/phones-telecoms-and-internet/advice-for-consumers/costs-and-billing/social-tariffs?fbclid=IwAR0lHT2grjhMOC-QL2sMPLByNHhsx-OVSsyvWX1DCekOr-WJjOpl9XuKfF0#full-list-of-available-tariffs

 

Introducing #MEAction’s 2019 ME Research Summary

https://www.meaction.net/2019/06/12/meaction-releases-an-updated-me-research-summary/?fbclid=IwAR02eUnx48_vTpflkCFsRqHEk5K6md_t5nW6vqZuc-wBJBw5H4H3ZD25Bww

 

Mitochondrial dysfunction and CoQ10 supplementation

https://www.meresearch.org.uk/mitochondrial-dysfunction-and-coq10-supplementation/?fbclid=IwAR0q3fiR4oWKVDXxcQ_uF1Qh9c_T2_vD5XgkdSp9D568pw7l-v8d9M1YdIc

 

SP Energy Networks Power Cuts Map

https://www.spenergynetworks.co.uk/pages/power_cuts_map.aspx?pCode=&fbclid=IwAR2bit-mcJ6_kymuoPXK1_Guc_a3H1EdZ0OIWwCjKD2qES8j0JC60n0v8AI

 

The NHS Healer

https://www.amazon.co.uk/NHS-Healer-Angie-Buxton-King/dp/0753539497?fbclid=IwAR1XY0qqWsHmNSiXE3KgHBAC12H6S7ShU46fGwcQFqE0Q6oLM5WX1y96H8Y

 

Nutrition for Pain Management – Foods to avoid

https://www.londonpainclinic.com/alternative/nutrition-for-pain-management-foods-to-avoid/?fbclid=IwAR2bit-mcJ6_kymuoPXK1_Guc_a3H1EdZ0OIWwCjKD2qES8j0JC60n0v8AI

 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS): good practice statement

https://www.gov.scot/publications/scottish-good-practice-statement-myalgic-encephalomyelitis-chronic-fatigue-syndrome-cfs/?fbclid=IwAR3YgEL6zXqliFyN1Gq35WuEhUmfhyKLCqmSF_FHunnQ4l5Bb1rWdv9jXww

 

What You Need To Know About Blood Type And Your Health

https://www.testing.com/articles/what-you-need-know-about-blood-type-and-your-health/?fbclid=IwAR3HylEOZ1DlHYZjVISgT1T34YV5wPLpvFhN9nywysmxDrIcIE3IvQ6nx6I#:~:text=For%20example%2C%20people%20with%20blood,of%20developing%20type%202%20diabetes

 

GBN: Britons with long Covid could be eligible for £172 a week help from the DWP

https://meassociation.org.uk/2024/01/gbn-britons-with-long-covid-could-be-eligible-for-172-a-week-help-from-the-dwp/?fbclid=IwAR3n0y4RX2Y0scN01hhsHJEcZoXBkdglcvYoCQ-YrkzjKqevUUfTArwyyAY

 

A researcher is looking for male ME/CFS Patient Experiences of the Healthcare System.

https://www.facebook.com/meactionscot/posts/pfbid02Mynmikb9nbzn1TgvEG82V48t42EJWbjNfok6xvFCP8v7avkgnzMYALeGNBfRpmK5l

 

Statement on ear seeds for CFS/ME – Dragon’s Den

https://acupuncture.org.uk/news/statement-on-ear-seeds-for-cfs-me-dragons-den/?fbclid=IwAR0SWROslmuhp_V5E3kKSfXxmNiMAjjs4vr-Lc8cwu0dfB5rFaS8wgRT_0w

 

Online Pacing Group Development Survey

https://docs.google.com/forms/d/e/1FAIpQLSdXpu5TKmZtYPDRnpwMf0iNE20SCHKZ5hJL5matumD_xKYraw/viewform?fbclid=IwAR2bit-mcJ6_kymuoPXK1_Guc_a3H1EdZ0OIWwCjKD2qES8j0JC60n0v8AI