For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group recently:

 

Myalgic Encephalomyelitis (ME) support (BBC)

https://www.bbc.co.uk/articles/c3d2j8jd0nno?fbclid=IwY2xjawTdaDFleHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEe5d6hZhX5xc0bvj3mJ2JgVbH3_zDIe4UN9QxU1g3pF4-Crwf4ql_SWm2bajE_aem_cCkIxQikcDlqaC0Yvc5q2g

 

Template: Blue Badge Applications

https://meassociation.org.uk/literature/items/template-blue-badge-applications/?fbclid=IwY2xjawTdaKNleHRuA2FlbQIxMABicmlkETBpWmlsWlF1UlpUTk5DdDNQc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHuHuOMf-FPbrhnKPMIKMhP1oihpW5loW3J8HBvjV7DfdrJiuPtd9oTTFfqr1_aem_ES5E7PYXmKQJ5MRO8jZW8w

 

If you’ve been refused a Blue Badge

https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/help-for-disabled-travellers1/blue-badge-scheme/if-youve-been-refused-a-blue-badge/?fbclid=IwY2xjawTdaNFleHRuA2FlbQIxMABicmlkETBpWmlsWlF1UlpUTk5DdDNQc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHuX7pjjCX5Bljsb26grsIHtOngVZ3hEzIUtME_5aKcCQF_kT_aF4df28VlZW_aem_A32MTNCAcPgJN99osZeNfA

 

Invest in ME/CFS research and care petition

https://www.change.org/p/invest-in-me-cfs-research-and-care?recruited_by_id=1ae7f3c0-6348-11f1-ba6b-0955037e47fd&utm_source=share_petition&utm_campaign=share_petition&utm_medium=copylink&share_id=q9dtjTHjbs

 

Preprint Research: Mapping the Symptom Profile and Burden of ME/CFS: Insights from the TIMES Survey

https://meassociation.org.uk/2026/06/preprint-research-mapping-the-symptom-profile-and-burden-of-me-cfs-insights-from-the-times-survey/?fbclid=IwY2xjawTdaaVleHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeJxsD8pUnSDf69rR-aDVEWgpdiFLOwq_9rfxjwkPtybGYrME9_rigFuY7RT0_aem_Es_VWjkdOwgMn7Z5lHAdoQ


Severe ME Awareness Week 2026:  3rd-9th August

https://meassociation.org.uk/about-the-mea/campaigns/severe-me-week/?fbclid=IwY2xjawTdalJleHRuA2FlbQIxMABicmlkETBpWmlsWlF1UlpUTk5DdDNQc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHhUNAO6hoRhh0DmCQnj65f0V_39JG5nIIEGgBgvgEEJLpBMIiSIoLbjYV67i_aem_Ht3tRSjSs5WufAHe6iw13A

 

The COMPASS-ME Study

https://quadram.ac.uk/compass-me/?fbclid=IwY2xjawTdaq5leHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeY3yGiktistak7N92n_GPfvFcpzZ7O3jj8HHEK_PyRpo8Lmbp8y2DzZ8eEeQ_aem_7Qfz-Jk2Rbik-mpMeQ9nWQ

 

Improving support by raising awareness: Learn about ME project

https://www.alliance-scotland.org.uk/blog/opinion/improving-support-by-raising-awareness-learn-about-me-project/?fbclid=IwY2xjawTda1pleHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeA_mVpzZS-BGmmGp9LYtAduxuy-dZiRT1AbwZFqpSNAxKbuaeYAsO2krjYYw_aem_dIUqRdxDB1D0osxQbeOYiQ

 

Largest-Ever Genetic Study of Fibromyalgia Points to a Neurological Origin

https://www.technologynetworks.com/genomics/news/largest-ever-genetic-study-of-fibromyalgia-points-to-a-neurological-origin-415085?fbclid=IwY2xjawTda6ZleHRuA2FlbQIxMABicmlkETBpWmlsWlF1UlpUTk5DdDNQc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHlSV7SHyIhrTsjB3dQv34-SXYE8XSBh3nkEvOjmaOB4hIzil9EI1UmAnJa8q_aem_wNr7IWgceLvFjgLffRnLGA

 

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