For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during October:

 

Peter Todd Twitter post: “I have today sent @NICEComms a letter before claim under the judicial review pre-action protocol regarding its decision of 17th August 2021 to pause publication of its updated guidelines on the diagnosis and management of ME/CFS #publishthatguideline”

https://twitter.com/petertodd_/status/1443887167055581188?s=21          

 

Long Covid: ‘Hyperbaric chamber treatment transformed my life’

https://www.bbc.co.uk/news/uk-scotland-north-east-orkney-shetland-58724980?fbclid=IwAR3rUWBbgLD6z-BzsPnNTa7UtJxRBNM5pOSO1keQxeybPObKa36wiprUMow

 

Is this what’s behind long Covid? Sufferers have ‘micro blood clots’ that may stop oxygen flowing around the body properly

https://www.dailymail.co.uk/health/article-10057611/Covid-survivors-plagued-symptoms-weeks-beating-illness-micro-blood-clots.html?fbclid=IwAR1kS1cLQrMOgHfQjq9Es2HAQH4N391_sxTfBYfY46DaESKV4ZQb4VGOrVc

 

Physios for ME survey on heart rate monitoring in ME/CFS

https://meassociation.org.uk/2021/10/physios-for-me-survey-on-heart-rate-monitoring-in-me-cfs/?fbclid=IwAR2fUG-eKdtZ01GUnFajRciV7RpXpiGWYHeGNSpI6A5ZHjFntE9KGYKI9os

 

Understanding the Pathology of ME/CFS’ – Factsheet

https://l.facebook.com/l.php?u=https%3A%2F%2Fmeassociation.org.uk%2Fwp-content%2Fuploads%2FResearch-Summary-Factsheet-The-pathology-of-ME.pdf%3Fmc_cid%3Dc21fc33c14%26mc_eid%3D2c6268df9b%26fbclid%3DIwAR2MQnUmW8C4Ev6YHLGX7vtADMg9hUxkrX9yzd_FROkwys4flLajweYciV0&h=AT2vjSd_Me9_NP8L_BSnRvDdWIteLW14QrnZu6KJeUBPo1dXDEqN1nI-wwPpk0sPtX6XVhis_A3oZE40LumG4ybXZ0Y3-uSihoy5l3FCBSn-94JHnuxBMxzeAKV8iI5IrA&__tn__=H-R&c[0]=AT1vo7HxK2t3WvWWjIuwPkm69VFBullfivXKZ9ugHlAf29uHF9J-SDfif13RckdKyPolORsuIof0n421_Zhm2hM7OWPI6jIMybq7rL9KnjfZBxdGDBuJ2u01WKqWD4MVu4GTDujz2dT4xEUoSAMJAKLDT8V0kTKU8_sh6RTnA9T6J_0–LxdFgKfcEsRejM7x5YU2u5EA6jtFzB1F7KwEVAWZIxGSzXWQ738aMQqJ0w

 

ME patient goes to court in row over exercise therapy for chronic fatigue syndrome

https://inews.co.uk/news/health/me-patient-court-row-exercise-therapy-chronic-fatigue-1239380?fbclid=IwAR2j0elGRAE9nr-UR9bqMQM_tJg3a1WSSSFOaoAuOZmRfhh6WQTqePP2n-8

 

In Dutch: Genezen van langdurige COVID dankzij medicijn dat autoantilichamen neutraliseert. Hoop voor ME/cvs?

https://www.me-gids.net/nieuwsartikel/genezen-van-langdurige-covid-dankzij-medicijn-dat-autoantilichamen-neutraliseert-hoop-voor-me-cvs/?utm_source=dlvr.it&utm_medium=twitter

 

Warm home discount 2021: How to apply for the £140 scheme, who can get it and when it is paid

https://inews.co.uk/inews-lifestyle/money/bills/warm-home-discount-2021-apply-how-scheme-140-who-can-get-when-paid-explained-1233151?fbclid=IwAR3rUWBbgLD6z-BzsPnNTa7UtJxRBNM5pOSO1keQxeybPObKa36wiprUMow

 

What “Phantom Nasal Congestion” May Tell Us About ME/CFS and Fibromyalgia

https://www.healthrising.org/blog/2019/10/14/phantom-nasal-congestion-chronic-fatigue-fibromyalgia/?fbclid=IwAR0r2BJg63aF2J6V8ELHUDqv_ESprzZoWfMfM2ghpvy9d0w2UiovqsCL_B4

 

This Week in Virology 816: Long COVID and ME/CFS with David Tuller

https://www.youtube.com/watch?v=tnbz5EzbIBE

 

Chronic fatigue patients insist ‘cruel’ exercise therapy should be banished, while doctors claim it is one of the few things that works… so who is right?

https://www.dailymail.co.uk/health/article-10099189/Should-exercise-therapy-chronic-fatigue-patients-banished.html

 

Contrast showers

https://iancallaghan.co.uk/contrast-showers/?fbclid=IwAR11Uy0aguDm2HiL92T8hcwHZmM2VYLiX6fWQZh2ICtJ3A51ZgDN3HjwqMI

 

Update on 2021 Flu Vaccine and 3rd COVID-19 ‘booster’ Vaccine for people with ME/CFS

https://meassociation.org.uk/2021/09/update-on-flu-vaccinations-and-covid-19-booster-vaccinations-for-people-with-me-cfs/?fbclid=IwAR11Uy0aguDm2HiL92T8hcwHZmM2VYLiX6fWQZh2ICtJ3A51ZgDN3HjwqMI

 

NICE pause publication of new ME/CFS guideline

https://www.youtube.com/watch?v=4IxIxF3GJFo

 

Trial By Error: Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline

https://www.virology.ws/2021/10/18/trial-by-error-advocates-issue-hopeful-comments-after-nice-pow-wow-on-me-cfs-guideline/?fbclid=IwAR3EGoNxUTW4Xk1UEGvRkhsGAu1ju9-zCx9mIH8mcw_ho_ZT9UV72We27ag

 

NICE announces next steps for publication of its guideline on ME/CFS

https://www.nice.org.uk/news/article/nice-announces-next-steps-for-publication-of-its-guideline-on-me-cfs?fbclid=IwAR2MQnUmW8C4Ev6YHLGX7vtADMg9hUxkrX9yzd_FROkwys4flLajweYciV0

 

Joint Hypermobility and Fibromyalgia

https://www.verywellhealth.com/joint-hypermobility-and-fibromyalgia-188184

 

IACFS/ME Conference – Dr Hector Bonilla on “Case Presentation: Treating ME/CFS with Aripiprazole”

https://meassociation.org.uk/2021/10/iacfs-me-conference-dr-hector-bonilla-on-case-presentation-treating-me-cfs-with-aripiprazole/

 

New Treatment Guideline, Same Old Denialism

https://thesciencebit.net/2021/10/24/new-treatment-guideline-same-old-denialism/?fbclid=IwAR22ks8ZGVqFXCyge4SQGUkOUrcZDKiKIRT5WKQegj-__xaqe0vOGEE1DC0

 

Jonathan Ross reveals daughter has ‘debilitating’ condition as he cancels annual Halloween party

https://metro.co.uk/2021/10/26/jonathan-ross-reveals-daughter-has-debilitating-health-condition-15487315/?fbclid=IwAR3DiXLwD34zLMFeeGsarGXdzWh1F-BaSK4cEZ6P-1xzrznM913Q2BlAPSY

 

Free New Winter Vaccines Leaflet: Flu, Pneumonia, and Covid-19 Booster

https://meassociation.org.uk/2021/10/new-winter-vaccines-leaflet/?fbclid=IwAR2fUG-eKdtZ01GUnFajRciV7RpXpiGWYHeGNSpI6A5ZHjFntE9KGYKI9os

 

DGMEFM Network – Survey for Support Agencies

https://www.surveymonkey.co.uk/r/DGMEFM-partner-survey?fbclid=IwAR3gCiFGGqyrijbqGoTfq1BaKPhcX3-lSO6XV8IGKaXd5pXG6JlTA0gXi3g

 

Study Shows That Fibromyalgia is a Post-infectious Disease Too

https://www.healthrising.org/blog/2021/10/27/fibromyalgia-post-infectious-disease/?fbclid=IwAR3W9a4rvk8uQoA6bGBfMvG22siicMW-uAzucrUKGNAM6PwEcmPukCR7Qms

 

Chronic fatigue syndrome advice scraps exercise therapy

https://www.bbc.com/news/health-59080007?fbclid=IwAR0AURwHP6AA4MZOVClTrcVcJojx9qsfvxaKwSVl5QKgm2xtrHpn0achpsA

 

2nd November – Long-Covid, Fibro. & M.E. – The Overlaps in Patient Care? Dr Joseph McVeigh

https://www.eventbrite.co.uk/e/long-covid-fibro-me-the-overlaps-in-patient-care-dr-joseph-mcveigh-tickets-194643783797?utm_source=eventbrite&utm_medium=email&utm_campaign=newsletter_editorial&utm_content=reg.85683863.r2021_43&utm_term=ebemnsuserinsight&ref=ebemnsuserinsight&afu=489567797515&rank=5&recommended_events_quantity=15&aff=ebemnsuserinsight&fbclid=IwAR38xAFQUYfDwQ1CbnDsi1YB8ER16GGeWhqJepNQL_gYqL70bvswsQPlPWQ

 

NICE have now published the final version of the new guideline.

https://meassociation.org.uk/2021/10/the-new-nice-guideline-on-me-cfs-is-published/?fbclid=IwAR0uRMio7LCRQLGBDb57ApicWq9HhID37X6nhg1XTVysltwB6_FBaUycN3c

 

NICE publishes new guideline for “ME/CFS” [updated]

https://valerieeliotsmith.com/2021/10/29/nice-publishes-updated-guideline-for-me-cfs/?fbclid=IwAR3Y3jmNdQ4rmXjmUr9f1eRy73ZILrQpl8JWcSge8CvejUzPBEQvFsbKWDE

 

Invest in ME Research Statement

https://investinme.org/ng206-guidelines-publication-oct2021.shtml?fbclid=IwAR38xAFQUYfDwQ1CbnDsi1YB8ER16GGeWhqJepNQL_gYqL70bvswsQPlPWQ

 

Medical leaders sign joint statement in response to NICE guidance on ME/CFS

https://www.rcplondon.ac.uk/news/medical-leaders-sign-joint-statement-response-nice-guidance-mecfs?fbclid=IwAR1VetvK5-vVXmjDaOhLoMOcXi9IYfnSvQ3vqDU0JoZd8Z4mUZDNJxtx5qU

 

The new NICE Guideline for ME/CFS: Ten Questions Answered

https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/?fbclid=IwAR06Q0cRj-vWb0zH2OKDS_DtBPtIBJ7wFcbeS4HsIg8Spic0Gq62m-S5y5I

 

RHEUmatic and musculoskeletal conditions: geographical MApping of Prevalence and outcomeS (RHEUMAPS)

https://www.abdn.ac.uk/iahs/research/epidemiology/mapping-rmd-study-1688.php?fbclid=IwAR3Y7Gioj7sCAP3Uy34Lj1K5j48bTYqDLTkDNR_xSIQBt_92JuLREFtr3S8