For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during April and May:

 

Earlier diagnosis and better care needed for ME and Long COVID patients, report finds

https://news.exeter.ac.uk/faculty-of-health-and-life-sciences/earlier-diagnosis-and-better-care-needed-for-me-and-long-covid-patients-report-finds/?fbclid=IwY2xjawKqdBxleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR4frviZpwROH9AXVJhKqGKXDzCO5-j_CK-dU1rVfH_3YXbouzjytyxU-m-a1w_aem_pvnJK_7tcYSkVDYB6TrasA

Millions Missing Scotland 2025: Red alert for ME

https://www.meaction.net/2025/04/27/millions-missing-scotland-2025-red-alert-for-me/?fbclid=IwY2xjawKqdWBleHRuA2FlbQIxMABicmlkETBLazVGckdjZGpwMGJQNmFGAR6bJxRll69dHsWTDESP6VzN2tfH3Xmm9Bd4vKSZPInredel5qQESAVhZ02Fhg_aem_R02G21fYFDHKqdd9vkDsvg

FMA …

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Wellbeing Worker

 

Hours: 21 hours per week

Length of contract: Fixed term contract until 31^st May 2028. Possible extension dependent on funding.

Pay scale: £26,390 pro rata

 

Thanks to funding from the National Lottery Community Fund, we are delighted to be recruiting a Wellbeing Worker.

 

Full details of the …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during November:

 

Damaged Mitochondria – the Original Sin? The Recent Mitochondrial ME/CFS Studies

https://www.healthrising.org/blog/2024/11/02/damaged-mitochondria-chronic-fatigue-syndrome/?fbclid=IwY2xjawHGZEhleHRuA2FlbQIxMQABHVvwRpYKI3bshLvN-51Y6Gz7yi7vwx4Wx-9M_lX3spde_VwUb2oGIZ_xIA_aem_Ghqye6RJXog0jbPspzNgOw

 

Warm home discount scheme

https://www.gov.uk/the-warm-home-discount-scheme?fbclid=IwY2xjawHGZLhleHRuA2FlbQIxMQABHdyn-HtmgvUsPaD2uJaUH_geE7T3nyiGrTxCUqayHb3zN8eraFQsidJRZQ_aem_lAn0dkfNxgFNbvXA0zuwAA

 

Pathmaker community

https://www.wemakethepath.org/?fbclid=IwY2xjawHGZOtleHRuA2FlbQIxMQABHfLfUgsznr_F3TJAig2_0QyMhVdpyl5Sw9D6anwQiqtOHVPSWhh623fDJQ_aem_i-x1inwYj6jCo0v9XBwKew

 

Citizens advice bureau

https://www.dagcas.org/?fbclid=IwY2xjawHGZUFleHRuA2FlbQIxMQABHQxorjaYtYK_tVIsQPHFIiUfCZWxtsc-Y9vO4N5Ks43jyeetE7dUBvKwzQ_aem_kzRR6DE09jEkt9vXlY8UyQ

Emma from Citizens’ …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during October:

 

Get £100 to pay taxi fares if you are mobility impaired

https://new.dumgal.gov.uk/roads-transport-parking/public-transport/ps100-pay-taxi-fares-mobility-impaired?fbclid=IwY2xjawGVrrVleHRuA2FlbQIxMAABHQPPeGtsgvIMNj9NmJwoMAL7Dli9o_vOI4mnvaJJOKuF_8cjnzCp6041Ig_aem_JfPeWBIrRchVgMq2QcVV1w

 

Benefits advice

https://www.dumgal.gov.uk/CPW2024-Wednesday?fbclid=IwY2xjawGVrvdleHRuA2FlbQIxMQABHW0O348AtXaqTh2oI-C57jgLY1uPHE9F8V3bmFRQ2RASSojl619q2dx8Aw_aem_fFa7Q2-UyWbEBegi_qkBDA

 

The Warm Home Discount scheme

https://www.scottishpower.co.uk/warm-home-discount-scheme?fbclid=IwY2xjawGVr05leHRuA2FlbQIxMQABHQhCtzF2TGR5CU4g1z58ahsW2qE62oF7x238JBwnTzCHN5PVW2EEEx2Mmw_aem_bux_NT-ZrAaSa3AyKQ2LKw

 

Cost of living support

https://costofliving.dumgal.gov.uk/?fbclid=IwY2xjawGVr7BleHRuA2FlbQIxMQABHVAwicaz8XqLB5lTJmN2sNlfnoKJ45fEtDWLkSaQvztFnLLrkAxz7H_Ytw_aem_QOlNsfb9xsqAsC1RVcl2CQ

 

‘I’m …

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https://dgmefm.org.uk/wp-content/uploads/2024/10/2024-Impact-Report-Final-2.pdf

For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during September:

 

Research Opportunity

https://exe.qualtrics.com/jfe/form/SV_bjyGOweSJVw7vx4?fbclid=IwY2xjawFwpt5leHRuA2FlbQIxMQABHVM6_YkQ7DQryFGV7KFD9Q0t9d5mIiD9-Zfdrd2PbmjoCExyVTici_UoIQ_aem_ywd-Zk3GGabwTjs0-kiwIg

 

Help the British Psychological Society develop good practice guidelines for ME/CFS

https://meassociation.org.uk/2024/08/british-psychological-society-good-practice-guidelines/?fbclid=IwY2xjawFwp4BleHRuA2FlbQIxMQABHfs76eEEt4X5gqWfHE-0joQPuBpPi6GKlqA-qGVDfJNDZwaEqmxVQrPJ1g_aem_gAvq7X2knHagVF-GxZslGA

 

ALLIANCE responds to Adult Disability Payment Review consultation

https://www.alliance-scotland.org.uk/blog/news/alliance-responds-to-adp-review-consultation/?fbclid=IwY2xjawFwp_RleHRuA2FlbQIxMQABHQz6YUqUTqC4di8YxaMPWromBNg7-g_v7YI3M9HAX1TvFsNEhGC4_i_Cbg_aem_lDLhbKjO7RAkWFryL9xRCQ

 

New tool detects …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during August:

 

Why We Sleep (and What Happens When We Don’t)

https://www.healthrising.org/blog/2020/03/23/why-we-sleep-fibromyalgia-chronic-fatigue-walker/?fbclid=IwY2xjawFCe4hleHRuA2FlbQIxMQABHZIvDvR-qjyofkfI8Lt0zvCeoifO8aSvgzM_XTFDliVW5y_Sqfb1ztbC7g_aem_0b4FTrWpKALaraClzgEqVw

 

No one can do it alone: living with an invisible, misunderstood condition

https://www.alliance-scotland.org.uk/blog/opinion/no-one-can-do-it-alone-living-with-an-invisible-misunderstood-condition/?fbclid=IwY2xjawFCe8NleHRuA2FlbQIxMQABHa-e3_Wiij1RseE6hLCwb2hkhDvxtvgl-_PKVnuBW4lQNKMr0lqQUhrw0A_aem_miXFEGpWP_WaRg73brWd_w

 

**TW: Upsetting Content** Good …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during July:

FMA UK Newsletter

https://preview.mailerlite.com/d7z7u9o4p5/2513265503829498584/a4k5/?fbclid=IwY2xjawEdkR1leHRuA2FlbQIxMQABHTVbM3m6QKVHF_dnIe8xNWQOiG36zFr8yIpWfc1I7MGsDEZw4AUogjGkSQ_aem_Rg142JqTDmQZUT0gppTfDQ

 

‘Revolutionary’ device to tackle acid reflux given to first UK patients

https://www.itv.com/news/2024-06-17/revolutionary-device-to-tackle-acid-reflux-given-to-first-uk-patients?fbclid=IwY2xjawEdkWNleHRuA2FlbQIxMQABHWPYIOqqTMBtrx4OtMF7i8KXfIP-F4rxCnxvyGl-Azp–BAjkdlTh8uRyg_aem_mekJ7anYYkMXfTPgVur_Xw

 

Chronic virus found in Long Covid gut up to 2 years …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during June:

 

Carers UK is organising this open letter on behalf of unpaid carers across the UK. 

https://www.carersuk.org/news-and-campaigns/general-election-2024/open-letter-to-the-future-prime-minister?fbclid=IwZXh0bgNhZW0CMTEAAR0r1KDq6tPjmviD57X3Yka1jXHPKHrZIyoZcsoKHfe2SNpnyPyyyrkCaFI_aem_F3R6UJW6sn1jubHXN2Mlog

 

The ME association have created a new support pack for anyone …

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For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during December and January:

 

Emma NextGen Premium Mattress

https://www.emma-sleep.co.uk/emma-nextgen-premium-mattress/?fbclid=IwAR0oCfVninz8z1iJfiqznN4xfDwwgUY9OWeWQ3IAgGwlXt3u4WAZEL_Z_aM

 

What to do if you think you need help with energy bills

https://www.smartenergygb.org/about-smart-meters/advice-for-those-worried-about-energy-bills?gad_source=1&gclid=CjwKCAiA1MCrBhAoEiwAC2d64SFLozBRqceDbCpARv6SUGK7_XbgS-iTTVvDErLTFnDKunxsnCDV2hoCmuIQAvD_BwE&gclsrc=aw.ds&fbclid=IwAR3C4lWFRi9N2lA0Dx4TC3SECKvwsQg1k9TqQa-E8Y-9qwsVFRSSlyeGYJw

 

Medical Matters

https://meassociation.org.uk/medical-matters/

 

Support to access benefits …

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