May 2018 Facebook Blog

KimJakobsen
Blog, Resources

The following is a summary of relevant article/research links provided in May by Facebook members.  Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome ME Awareness Week: BBC Newsbeat Documentary Missing the fizz: my long battle to understand the mysteries of ME This is why exercise can’t cure illness ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP ‘Urgent change’ needed to improve lives of ME sufferers On Saturday ‘millions’ of ‘missing’ people will reappear for the day ME

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@Unrestfilm

KimJakobsen
Fibromyalgia, ME, Resources

Today’s Unrest in Dumfries and Galloway event.  We’d invited the NHS, MSPs and other third sector organisations to a showing of an excerpt from Unrest to be followed by discussions. Thank you so much to Paul, Nancy, Lesley, Sarah and Connor who were thrown in at the deep end when Jen Brea wasn’t well enough to Skype with us.  They talked about their illness and how it affects them, which was much better for the understanding of those in the auditorium.  They were moved. You spoke powerfully and you spoke well. The discussion then moved on to our current situation in D&G – mainly in the NHS.  Some good suggestions were made

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