The following is a summary of relevant article/research links provided this month by Facebook members. Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs How Ketogenic Diets Curb Inflammation in the Brain. New Scientist: Blood cells in chronic fatigue syndrome are drained of energy. Metabolomics Study Points Finger at Energy Production in Fibromyalgia. For those looking for support to help them stay in work: link. Fibromyalgia and Gastroesophageal Reflux Disease Are Linked. Fibromyalgia Tied to Hysterectomy, Gynecologic Disease. Trial By Error: The Surprising New BMJ Best Practice Guide. Massage technique ‘speeds up’ diagnosis of chronic fatigue illnesses.
For those of you looking for advice on diet and nutrition, you may wish to attend the 2nd November Monthly Meeting Our AGM on 5th October was not well attended. Thank you to the 4 members that Craig (Chairperson) contacted by telephone on the day to agree to their proxy vote being used to allow the AGM to meet quorum of 10 members. The following is a summary of relevant article/research links provided this month by Facebook members. Links to all the items are included, just click on the article name, word ‘link’ or ‘article’ to open. Articles / Blogs The Future Learn course, ‘The role of personal assistants in
We are very grateful to all of our members who are helping us in one way or another towards meeting our costs. Gift Day donations and standing orders, plus Easyfundraising and Gift Aid payments in August and September amounted to £624. Figures for October 2017: Easyfundraising raised £6.74 (funds are transferred quarterly) Gift Day one-off donations – £375 Weekly/Monthly donations, direct payments to bank – £12 Sale of KJ jewellery – £26 Gift Aid via mydonate – £5 Gift Aid claim on other eligible donations yet to be submitted This is the link for Easyfundraising and our cause: link Thank you Paul – DGMEFM Network Treasurer
The 5th October meeting will start with our Annual General Meeting (AGM). We need a minimum of 10 members to attend for this please. Articles / Blogs Metabolic switch may bring on chronic fatigue syndrome, article . ‘The team is now conducting a large trial in Norway of the cancer drug rituximab, which destroys the cells that make antibodies, in people with CFS. Results are expected next year.’ Lady Gaga was taken to hospital in ‘severe pain’ cancelling her Rock In Rio appearance. Shortly afterwards she confirmed she has Fibromyalgia, forcing her to reschedule her European leg of her tour, BBC article. For those of you with Netflix, her documentary, Gaga:
As we enter September there is a definite nip in the air. If like me you find your body thermostat is wonky, the start of the cold weather will hit you hard, so try and remember to layer up. Thank you to all the members who completed our survey which will help us focus our own depleted energies on the things that you have shared matter to you. We really do appreciate the time you put in completing this survey as we understand how difficult completing the simplest of tasks can be. The 7th September meeting has the theme of Medications and Supplements. Come along and share what works for
Welcome to August and for registered members, the receipt of our feedback questionnaire which we would be very grateful for members to complete. Although this has been provided in paper format, completing this online would really help us out as your record would immediately be saved and stored in a secure location. There were lots of interactions this month with members sharing advice, offering suggestions or empathising where Facebook members were struggling. Articles / Blogs The article ‘Even “Minor” Infections Can Cause Chronic Fatigue Syndrome (ME/CFS)’ was shared. The article ‘Biological underpinnings of chronic fatigue syndrome begin to emerge’ was shared. The ME Association article ‘CDC removes CBT and GET
Welcome to July and the start of School holidays. If you are interested in helping with the creation of the monthly Facebook blog, please email Kim (Secretary) at: firstname.lastname@example.org. 😊 Articles / Blogs One of the biggest myths about chronic fatigue syndrome just got destroyed in this article which suggests a faulty cell receptor. Could there be a biomarker for ME/CFS?, check out this article. The article ‘Brit scientist could be about to CURE multiple sclerosis and provide hope for millions’ was shared as potentially could, in time, cure other conditions. The article explains how they are not using any drugs but instead simply switching on the body’s own systems of
A big thank you to the Network members who brought awareness to shoppers visiting Tesco Extra, Cuckoo Bridge, Dumfries on Awareness Day, 12th May 2017. Check out one of the pictures on our blog. If you are interested in helping with the creation of the monthly Facebook blog, please email Kim (Secretary) at: email@example.com Articles / Blogs How to tell if it’s Fibromyalgia or Multiple Sclerosis is available at link. Stereotyping still prevents ME from being taken seriously is available at link. Kay Adams revisited ME on her show on Awareness day, see link. Reduced cardiac volumes in chronic fatigue syndrome associate with plasma volume but not length of disease: a cohort
Please come along and support us at the big Tesco Extra, Cuckoo Bridge in Dumfries on 12th May, Awareness Day, as we let people know about ME and Fibromyalgia. We’ll have a desk near the entrance to answer any questions people ask, and hand out contact cards for the group. We also have purple (for Fibromyalgia) and blue (for ME/CFS) Awareness ribbons to give out in exchange for a donation.
Members of the Network will have a stand in the foyer at Tesco Extra, Cuckoo Bridge, Dumfries on Awareness Day, 12th May 2017 to share information about these illnesses and the Network. Both blue and purple ribbon pins will be available. Articles / Blogs A Scottish student will walk the red carpet at this year’s Cannes film festival after his short graduation film was chosen from thousands of entries to compete for a prize. Wild Horses, which he wrote and directed, is about a teenage girl who has myalgic encephalopathy (ME), or chronic fatigue syndrome. Check out the article. On 21/4/17, the ME Association posted about an ongoing storyline about