For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during February:
Find information about upcoming events (including how to book a place). Read about our previous events or check our other Flippin’ Pain news.
https://www.flippinpain.co.uk/news-events/
Progress and Expectations in Long-COVID Treatment
https://covid.responsumhealth.com/evolving-needs-and-progress-in-the-treatment-of-long-covid
If you shop on Amazon, please consider signing up with AmazonSmile at smile.amazon.co.uk and choosing Dumfries & Galloway ME and Fibromyalgia Network (must be our full name) as your charity. AmazonSmile will donate 0.5% of the net purchase price (excluding VAT, returns and shipping fees) at no cost to you. We’ve received £230 from them so far.
Through Easyfundraising, there are many shops and merchants who will give a % donation at no cost to you. If you sign up with them at https://www.easyfundraising.org.uk/ we’re known as DGMEFM Network. So far we’ve received £500 through Easyfundraising.
Thank you!
We are currently reviewing our single occupant discounts. These apply when only one adult lives in the household. If you receive this discount, you may be asked to complete a new form giving us up to date details. Full instructions on how to complete it will be on your letter.
14:30: Westminster Hall debate: Disability benefits assessments and the Government’s health and disability green paper
Eileen (our Chair) has published her latest blog… February already… https://dgmefm.org.uk/2022/02/01/february-already/
The great gaslighting: how Covid longhaulers are still fighting for recognition
Taming the Fight/Flight Response in ME/CFS and Fibromyalgia Pt I: Andrea Parker Tries Vagus Nerve Stimulation
Scottish village Lochmaben most beautiful loch’s
Please help the Network out if you can
If you are a member, you will have received an e-mail today asking you to complete a survey for a piece of research that we are taking part in relating to digital skills, access and motivation of people in Dumfries and Galloway.
If you can fill it out that would be amazing as for every completed survey, the Network is paid £30!
If you didn’t receive an e-mail, but would be happy to help us by completing the survey (it seems to be taking most people somewhere between 5 and 15 minutes), please e-mail eppie@dgmefm.org.uk and I will send you the info.
Thank you so much for your help!
If we get a decent number of these surveys completed, it will make a real difference to the Network’s overall income for this year!
Aanhoudende lichamelijke klachten vaak inconsistent beoordeeld
Report DWP refused to publish on disabled people’s experience of benefits system now available online
Systematic review and meta-analysis of cognitive impairment in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
https://www.nature.com/articles/s41598-021-04764-w
Living in a woman’s body: this body is a genetic mistake – but it is sex, laughter and beauty too
Home Essentials: Stay connected with our low-cost broadband and phone plans. Available if you’re on specific benefits, they’re perfect for everything from accessing services to video calls and streaming TV.
The doctor who was told her illness was ‘all in her head’ – and is transforming the treatment of her rare genetic condition
Blake Stevenson Ltd have been commissioned by the Scottish Government to gather the views of stakeholders about the new ME/CFS NICE guidelines in order to understand which short-term priorities should be explored and the actions needed to be taken to implement these guidelines in Scotland. You can access more information and the survey through this link: https://online1.snapsurveys.com/mecfsstakeholders
The survey is live until Friday 11th March.
Dynamic Epigenetic Changes during a Relapse and Recovery Cycle in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Editorial: Current Insights Into Complex Post-infection Fatigue Syndromes With Unknown Aetiology: The Case of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Beyond