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posticon Facebook Group Activity in September

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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during September:

 

“What is it like living with fibromyalgia? Difficult, unpredictable and painful.”

https://www.versusarthritis.org/news/2021/september/what-is-it-like-living-with-fibromyalgia-difficult-unpredictable-and-painful/?utm_campaign=n-21&utm_medium=vearne&utm_source=orsofa&fbclid=IwAR3EsA7N5xf_KK7am7dQ06JPr9vaEhMGR6vymTwE5b_ad3POaRONCi3FFBc

 

Experts launch world’s largest genetic study of ME

https://www.bbc.co.uk/news/uk-scotland-edinburgh-east-fife-62876472?fbclid=IwAR3G_PxBESucBkEO04djWCzZvJc0ihGNSErr3attf1uNsz68mcdeqYHfm24

 

Twitter – Maya Henning – #LongCovid …

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posticon Care Opinion

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For those of you who haven’t yet come across Care Opinion, it’s a handy resource to allow you to provide feedback on health and care services.

Your feedback is sent directly to the relevant head of service and you should receive a direct response.

Care Opinion

posticon Facebook Group activity in August

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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during August:

 

Update: The ‘Recovery College’ withdraws outdated information on ME/CFS

https://meassociation.org.uk/2022/08/recovery-college-information-on-me-cfs-the-mea-writes-to-request-a-rewrite-of-their-online-educational-material/

 

BBC Radio Scotland: MS GB FINALIST – We’ll speak to Bishopton mum Sarah Victoria Bayley who’s in …

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posticon Update to the August Blog.

Updated on date

So here is the saga of the disability walker, in full detail.

 

I waited in for the domiciliary visit which was supposed to be 3pm.

By 3.30pm I decided to ring the single access number again to ask how late the visit was going to be.

Well, my previous telephone …

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posticon We are looking for new Trustees

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If you, or someone you know, may be interested in becoming a trustee, whether existing or new member, friend, partner, or family member, please contact: Eileen Longworth Tel: 07557 536110, or email admin@dgmefm.org.uk for an informal chat.

The post is voluntary but travel expenses etc are covered by the charity. …

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posticon Facebook Group activity in July

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For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during July:

 

BBC Look North (North East and Cumbria) segment on ME/CFS

https://www.youtube.com/watch?v=mBK2AjDIb_4

 

MEA requests meeting with North Cumbria NHS Trust to discuss their ME/CFS referral service

https://meassociation.org.uk/2022/07/mea-requests-meeting-with-north-cumbria-nhs-trust-to-discuss-their-me-cfs-referral-service/

 

Myalgic …

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posticon August Blog

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Well, I’ve been missing in action for a couple of months, and I haven’t even got a note from my mother! 😃 To be honest I’ve been burning the candle at both ends, 🤣🤣 living life, and to heck with counting spoons. 😟

In June I had a holiday booked …

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posticon Facebook Group activity in May

Updated on date

For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during May:

 

Medical Matters – Health questions answered by our experts:

https://meassociation.org.uk/medical-matters/?utm_medium=email&utm_source=getresponse&utm_content=ME%20Association%3A%20Medical%20questions%20answered&utm_campaign=Newsletter&fbclid=IwAR2RrZ6yPbVc8Lg0kzuq0QlnYn5sdTvQeq-FISrc1IFzKHjFUL7ECJS-cNw

 

A new template letter has been produced to help people with ME/CFS to be considered …

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posticon Facebook Group activity in June

Updated on date

For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during June:

 

Record 2 million people in UK estimated to have long Covid

https://shared-news.upday.com/?streamType=breaking&edition=en&teaserId=c9afabe2-b3ae-4a89-b381-510abc378e80&articleUrl=https://news.upday.com/uk/record-two-million-britons-have-long-covid/?utm_source%3Dupday%26utm_medium%3Dreferral

 

Kirsty Young health: Star ‘floored’ by incurable condition – symptoms of fibromyalgia

https://www.express.co.uk/life-style/health/1618359/kirsty-young-health-fibromyalgia-rheumatoid-arthritis-symptoms-treatment?fbclid=IwAR39Wd4cYHJbCrUaVN5vwLbULRLBGQuFazdSSQ285ykBFZhI5u8s52moNlQ …

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posticon Online Learning Event – Recording

Updated on date
Our learning event took place on 12th May. The event was a platform for us to share the findings of the extensive piece of consultation work that Sleeping Giants have been carrying out on our behalf. Most notably, sharing the appetite of both health and social care professionals and people …

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