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Category: Blog

posticon The Network needs your help!

Updated on date
New Board members needed…
 
Over the last 18 months we’ve grown quite considerably. We now have a member of staff (Kalpana – befriending and peer mentoring project officer) and a freelance team member (Eppie – business, admin and management support). We have received funding from a wide variety of sources …

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posticon Facebook Group Activity in January

Posted on date

For those of you who don’t use Facebook, below is a list of the external links shared within our Facebook Group during January:

 

Jonathan Ross reveals daughter Betty, 30, is using a wheelchair as she battles long-term illness

https://www.thesun.co.uk/tv/20899774/jonathan-ross-daughter-betty-wheelchair-illness/?fbclid=IwAR2Uq5hHddpPSmuXSi5FlO6_5HkifY0QONoDL2Kix9kgZwUh-FAzhsGFDgQ

 

Social tariffs: Cheaper broadband and phone packages

https://www.ofcom.org.uk/phones-telecoms-and-internet/advice-for-consumers/costs-and-billing/social-tariffs?fbclid=IwAR3MEYpWO5D4ZwiLcRkKiVDq4Msd9rfpZ__Pqf22JWTf3dEIEu7V3atPQyc

 

Information on NHS …

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posticon Facebook Group Activity in September

Posted on date

For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during September:

 

“What is it like living with fibromyalgia? Difficult, unpredictable and painful.”

https://www.versusarthritis.org/news/2021/september/what-is-it-like-living-with-fibromyalgia-difficult-unpredictable-and-painful/?utm_campaign=n-21&utm_medium=vearne&utm_source=orsofa&fbclid=IwAR3EsA7N5xf_KK7am7dQ06JPr9vaEhMGR6vymTwE5b_ad3POaRONCi3FFBc

 

Experts launch world’s largest genetic study of ME

https://www.bbc.co.uk/news/uk-scotland-edinburgh-east-fife-62876472?fbclid=IwAR3G_PxBESucBkEO04djWCzZvJc0ihGNSErr3attf1uNsz68mcdeqYHfm24

 

Twitter – Maya Henning – #LongCovid …

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posticon Facebook Group activity in July

Posted on date

For those of you who don’t use Facebook. Below is a list of the external links shared within our Facebook Group during July:

 

BBC Look North (North East and Cumbria) segment on ME/CFS

https://www.youtube.com/watch?v=mBK2AjDIb_4

 

MEA requests meeting with North Cumbria NHS Trust to discuss their ME/CFS referral service

https://meassociation.org.uk/2022/07/mea-requests-meeting-with-north-cumbria-nhs-trust-to-discuss-their-me-cfs-referral-service/

 

Myalgic …

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posticon DGMEFM Hiatus Hernia and Healthy Eating Change

Posted on date

My Hiatus Hernia and Healthy Eating Change

by DGMEFM Network Member

I’m used to making big life changes when it comes to my health.  My body can be so sensitive to abnormalities.  

Sadly I felt it would be easier to die than managing the acute pain from two stupid gallstones. …

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posticon DGMEFM Self-Management for Chronic Pain

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Multi coloured dragonfly image

Many DGMEFM Members have lived experiences of Self Managing their Chronic Pain

Chronic pain impacts more than just the body.  We know that for people living with pain, raising concerns about wider aspects of health in appointments with their health-care professional is not always easy and their concerns and worries do …

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posticon May Blog 2021

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This month has been an absolute scorcher across our region until the social distancing restrictions were lifted… then we got overnight frost, snow, and rain. Typical! Most of our members have been enjoying the weather, either basking in the warmth or getting a bit of gardening done. I had some …

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posticon April 2021 Blog

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I’ll start with the Committee’s many thanks to John Bell for all his work and his interesting, informative and entertaining blogs on our behalf. He has needed to step down, so Eileen and Annie will take over the Blog and bring their extra flavour to it along with our usual …

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posticon March 2021 Blog

Posted on date

John is taking a break this month so the March blog won’t have his usual flair……….

………but here are some of the issues discussed and links posted on our Facebook pages this last month.

Hopefully John will be back soon. Take care and stay safe 💜 
                                                                                                                    Paul

Local Group News: …

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