November 2019 Facebook Blog

So here it is, Merry Xmas. Everybody`s having fun. Look to the future now. It`s only just begun. On a serious note this can also be a very difficult and painful time for all  sufferers. If you have any experiences or tips you`d like to share just add it via the blog or the Facebook page. We need to say a big thank you to Paul and his Iris folding at the last meeting. It was enjoyed by all and everyone got their own handmade card to take home. Hopefully in the future Paul would be kind enough to do it again. If you have a hobby or craft you

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October 2019 Facebook Blog

Welcome to all our new members this month. Feel free to attend the monthly meetings as its a good way to meet, discuss symptoms and basically get a break from the norm. Any crafty people out there who would be willing to show off their hobbies and maybe show the group how its done, please get in touch as we like to add these to our agenda. This month (7th November) Paul will bring his Iris Folding to the group, so if you like the sound of that please come and you may even leave with your own hand made Christmas card. The following is a summary of relevant article/research

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September 2019 Facebook Blog

The September Newsletter was issued, available on our website.  The following is a summary of relevant article/research links provided in September by Facebook members.  Please click on the article name to open and read it. Articles / Blogs Chronic fatigue syndrome: New test in sight.  A Town for people with Chronic Fatigue Syndrome.  Neuroendocrine Dysfunctions in Prolonged Critical Illness: Relevance for Chronic Fatigue Syndrome ME/CFS and Fibromyalgia Pt. I: Health Rising.  Neuroendocrine Dysfunctions in Prolonged Critical illness and Chronic Fatigue Syndrome ME/CFS and Fibromyalgia II: Treatment.  You Don’t Look Sick: ‘Having M.E. is like you’ve ran a marathon with the flu and were beaten up afterwards’.  The Harvard ME/CFS Collaboration.  Study

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August 2019 Facebook Blog

The following is a summary of relevant article/research links provided in August by Facebook members.  Please click on the article name to open and read it. Articles / Blogs Denmark: Analysis and comments to Karina Hansen’s journal from when she was sectioned at Hammel Neurocenter.  CBD oil: Have the benefits been overstated?   TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’.  Is the Brain Causing the Small Fiber Neuropathy in Fibromyalgia (and ME/CFS?).  How Toning the Vagus Nerve Heals Pain.  Can mHealth Tools, Smart Clothing Help in Chronic Fatigue Research?   Cortene to Move Forward on

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July 2019 Facebook Blog

The following is a summary of relevant article/research links provided in July by Facebook members.  Please click on the article name to open and read it. Articles / Blogs How swearing helps Fibromyalgia pain.  Australian teenager with severe ME describes forced psychiatric treatment.  Why Graded Exercise Therapy and Cognitive Behaviour Therapy are Controversial in Chronic Fatigue Syndrome.  Cognitive Behavioral Therapy “Evidence-Base” Is Exaggerated.  Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases.  Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome.  A Girl Behind Dark Glasses.  The Cochrane correspondence.  Support while you travel or shop.  The National Neurology Patient experience survey.  Good gut bacteria ‘helps

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June 2019 Facebook Blog

The following is a summary of relevant article/research links provided in June by Facebook members.  Please click on the article name to open and read it. Articles / Blogs Quick ME/CFS research update: Dr. Ron Davis speaks to Norway.  Rare Gene Mutations May Be Affecting Energy Levels in ME/CFS.  Burnout is an official medical diagnosis, World Health Organization says.  Abnormal blood lactate accumulation during repeated exercise testing in myalgic encephalomyelitis/chronic fatigue syndrome.  DWP quietly hands private firms £600m extra to test disabled people for benefits.  Study identifies protein that causes ‘exhaustion’ of immune system cells.  Lyme Disease’s Arthritis Inflammation Trigger Identified.  ME/ CFS experience and disease history.  Introducing #MEAction’s 2019

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May 2019 Facebook Blog

The following is a summary of relevant article/research links provided in May by Facebook members.  Please click on the article name to open and read it. Articles / Blogs A nanoelectronics-blood-based diagnostic biomarker for ME/CFS.  Epstein-Barr Virus dUTPase Induces Neuroinflammatory Mediators: Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.  Stanford scientists devised a blood-based test that accurately identified people with chronic fatigue syndrome, a new study reports.   “Just Be Positive!” Toxic Positivity, ME/CFS and Fibromyalgia.  Should you worry about painkiller addiction?   Threading the Needle: Nanoneedle Scores Big in First ME/CFS Test.  ME – The Shocking Disease.  Cognitive behavioural therapy for myalgic encephalomyelitis/chronic fatigue syndrome is not effective. Re-analysis of a Cochrane review.  Hope

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April 2019 Facebook Blog

The following is a summary of relevant article/research links provided in April by Facebook members.  Please click on the article name to open and read it. Articles / Blogs The Endless Cycle of Recovery and Relapse in Chronic Fatigue Syndrome.  Cellular Immune Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).  GET and CBT are not safe for ME – Summary of survey results.  Response to Commentary: ‘Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Chronic Fatigue: Three Distinct Entities Requiring Complete Different Approaches’.  Do you really believe in ME?   Evidence of Clinical Pathology Abnormalities in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) from an Analytic Cross-Sectional Study.  Medscape: New Findings Elucidate Potentially Treatable Aspects

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March 2019 Facebook Blog

The following is a summary of relevant article/research links provided in March by Facebook members.  Please click on the article name to open and read it. Articles / Blogs Solving the mystery of Chronic Fatigue Syndrome No. 1 Pacing Tip: How To Unlearn The “Completion Compulsion”. It’s Time to Pay Attention to “Chronic Fatigue Syndrome”. The Atypical Hypothyroidism in Chronic Fatigue Syndrome (ME/CFS), Plus a New Thyroid Subset?  MSP reveals £10.5 million NHS agency locus spend in one year for Dumfries and Galloway.   What happens when you have a disease doctors can’t diagnose. Just What The Doctor Ordered? Dumfries And Galloway Set For Boost As Social Prescribing Takes Off.

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February 2019 Facebook Blog

The following is a summary of relevant article/research links provided in February by Facebook members.  Please click on the article name to open and read it. Articles / Blogs Hypocapnic Cerebral Hypoperfusion: New Kind of Orthostatic Intolerance Points to Key Factor in ME/CFS and Others. For all my family and friends   Musings of a police officer on a diagnosis of ME/CFS. A brain short on sleep dials up pain intensity. Metabolomics Study Suggests Chronic Fatigue Syndrome May Be Oxidative Stress/Low Oxygen Disease. Newly Discovered Gene Governs Need for Sleep When Sick. Are Fluoroquinolones Causing Connective Tissue Disorders that are Leading to ME/CFS?  ‘We want to be regular people’ — pop

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